David was a little boy born on November 1, 2023 with a complex congenital heart defect called Hypoplastic Left Heart Syndrome (HLHS). We knew he had this condition from his 19 week anatomy scan, and eventually we were told that due to his intact/highly restrictive septum, his lungs had developed something called Nutmeg Lung. With these diagnoses, David was given at most 5 months to live. However, David defied those odds. Miraculously, he was born, and did not have Nutmeg Lung, but that wasn’t known for a while. At three and a half months of age, David had a delayed Norwood procedure – the first in a series of three palliative surgeries for HLHS. His recovery was slow and full of setbacks, but David kept surprising everyone. Eventually, it was learned that David was not a Glenn candidate, and he was worked up for transplant. David spent one week on the transplant list, before his heart gave out. He received compressions for 74 minutes, and ended up on ECMO for the third time. Unfortunately, David’s body could not recover from that cardiac arrest, and he passed away in his parents arms, surrounded by his most special nurses on June 20, 2024.
This page is where we will move our Caringbridge entries to and continue our conversations with David and things that remind us of our much loved little boy.