November 27, 2023

Once again, not much to report. David’s weight today returned to what it was on Saturday. We have decided to increase his volume per feeding in the hopes that will help him gain weight. He always seems hungry about 1/2 hour before his next scheduled feed, and for many of his feeds he seems to be upset when his bottle is empty, so hopefully the increase will help him feel more full for longer as well. If it does not work or he is unable to consistently finish the increase volume, they will fortify his milk some more (up to 28 kcals). I’m hoping the increased volume works for him because it sounds like the additional fortification might make the drink much thicker. 

Otherwise, it was a day of just mommy and David hanging out. Eli and Anna seem to be doing much better so they went back to “school”; however, Adam is now feeling under the weather. It sounds like if David has another day of good weight gain, that he could be coming home tomorrow. We’ll see. His increase in milk did not take effect until his afternoon feeding today so I’m not sure if that’s enough time to make much difference since he’ll be weighed bright and early tomorrow morning. 

I did learn today that David really does not like his multivitamin. He tolerated it fairly well yesterday, but really struggled today. We may try to switch it up into two smaller doses tomorrow, or even possibly mix it into a bottle. It also sounds like he may be able to get his feeding tube out before we leave! Tomorrow, we’ll meet with the home supply group to get the supplies we’ll need for going home and learn how to use them. We’re getting very close. David still needs his hearing tested though.