So, I’m sitting here at home and don’t know what to do with myself. There is plenty of stuff to do here that has been neglected the last few months since it didn’t seem as important as being with David, but my mind is still with David tonight. I was able to spend last night with David while Adam was able to spend Father’s Day evening at home with the others. This was such a wonderful opportunity of uninterrupted time with David, that I will cherish forever.
David has been receiving around the clock care by those who cared for him the most, for which we are extremely grateful. Before the events of last Thursday, David’s music therapist made a recording of his heartbeat. This was going to be his original, and then after the transplant, we were going to make another recording. At this moment, we are so thankful we have that recording. David also painted a Father’s Day card with his nurse on Thursday morning, which we will also cherish forever. He just lit up getting the paint on his hands and moving it around on the paper. We were going to start doing more things like that in the future since he enjoyed it so much. He even won a game of bingo that afternoon and used his prize to get a Vikings shirt for Adam.
Lately, he’s been listening to a lot of Taylor Swift – mostly just piano versions of Taylor’s songs, but today Taylor herself singing as well. We’re reading our favorite books and singing songs, and David is surrounded by all his favorite stuffies. The EEG leads were removed yesterday, and his hair is so beautiful and combed like a little school boy. He finished Harry Potter and the Sorcerer’s Stone last night, and he worked on creating some keepsake memories today. He’s no longer in a crib, but a big boy bed, making it easier to crawl in next to him for some snuggles.
David has also had so many visitors who have stopped by to tell him how much they love him. He’s feeling the love. In the last few days he’s seen all his grandparents, an aunt and uncles, all his core nurses, other nurses, his cardiologist, his surgeon, his transplant team, his neurology team, his pulmonologist, his nurse coordinator from clinic, OT, PT, Music Therapist, a volunteer, our pastors, and of course Fern and her mom (I hope I remembered everyone but likely forgot some), with more visitors coming still. He has touched so many lives. In return, all of the staff at the hospital has touched ours.
You continue to be in our prayers. David has had so much love surrounding him and he must feel that. Continue to feel the peace and comfort only God can give. 🙏🏼❤️
Jessica, As I have read to you in the Apostle Paul wrote in Romans: NOTHING, Absolutely Nothing will separate you or David from the Love of Christ. Time on Earth is short compared to a Timeless Heaven. That is why we do appreciate what time we have today, but look forward to the Wonderfulness of what is yet to come. I look forward to meeting my grandson in Paradise and when all our families will be together again. David’s story is just a beginning of something that will be Eternal.
This is a precious time. I’m sending love to join the abundance of love David and all of you are surrounded with.
I wish I were there to give you a hug. Cherish this time you have to spend with Mr. David, writing each memory onto your heart. So much love and joy he has brought into so many folks’ lives in such a short amount of time, he is a glorious wonder and most definitely a child of God.💕
Sending prayers to David and the rest of the family.
My prayers today are for gratitude for the gift of David, and that each of David’s loved ones (which extends far beyond his immediate family) will feel God’s presence, love, and comfort during this time of transition 🙏🏻💙🙏🏻💙🩷🙏🏻💙🩷🙏🏻
What a beautiful boy that had brought so much love to so many people . I know David feels the love today also.
Prayers said for all of you. 😘