November 11, 2023

Today was a day of mixed emotions. David himself had a great day! He got in lots of snuggles with Mommy and Daddy, and both of his siblings got to visit him. This was Anna’s first time meeting him and she absolutely loved him. 

David also had OT for some more massages and stretches, and I got in practice of picking him up and putting him into a seated position. Afterwards, I helped give him a bath in his bed, and then we put a shirt on him so he could wear his first article of clothing. He had a nice day with us. He also was slowly weaned off some medications. 

And now for the not so great news. For the first time, his chest x-ray was a little cloudy this morning. From a clinical standpoint, they said his lungs sounded clear and he was breathing easily so they don’t appear to have anything wrong. However, his lungs were clear on the x-ray yesterday but they weren’t today. So today they did not do any ventilator weans to see how his lungs look tomorrow. It makes me wonder if what they are seeing is related to his nutmeg lung and the removal of his chest tube yesterday, or just a side affect of the aggressive weans he’s had lately. Here’s hoping tomorrow’s x-ray looks better. 

A neurologist also came by around lunch time to talk with us more about his MRI results. The older kiddos were getting restless and so I didn’t hear a lot of the conversation, but Adam gave me a rundown. Yesterday I was told that there were no current issues or brain bleeds in his brain. However, they said something was a little cloudy and that a neurologist might be better able to interpret it, and that David would have a more comprehensive MRI next week for better images. Well, the neurologist said they see some signs of brain damage in a few areas, but it’s hard to tell a date when the damage occurred more than 7 days ago. They believe the damage is likely from a stroke he may have had shortly after birth. The areas of damage are in places that could affect his vision – although, since David in an infant, it is likely that his neurons will find a different route in his brain so that he may not have any sight issues. They also said that there is a chance that he could develop seizures. There is no timeline when seizures might occur – it could be soon, or several years from now, or it may never happen. 

Finally, at the end of the day, we were informed that David would be moved into a different room across the hall. This caught us off guard, especially since we had been decorating his current room to make it his own and we really liked his room. His new room isn’t quite as nice. We’ll figure it out in time.

4 thoughts on “November 11, 2023

  1. Glad to hear David is doing so well. His new room could be a sign he has advanced in his health, so I am thanking God. Prays and love from Rocky and I. I always give Rocky a rundown of the journal. Because dogs are closer to God than any mortal beings. If this wasn’t true then why does God spelled backwards is dog?

  2. Wow … busy day with lots of activities and events. David had lots of visitors – Mommy, Daddy and his brother and sister 💕.

  3. I’m completely enjoying the pictures that you were posting and watching David’s expressions become so visible ❤️ I detected a little smile when he met Anna 😊 He was obviously very excited to meet her for the first time in person ❤️🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻❤️

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