We are quickly learning that sometimes when things happen here, they happen very quickly. We were informed this morning that David could be discharged on Wednesday! 😳 I think that was the look on our faces when the doctor mentioned it this morning. A week ago when we were in the market for a new … Continue reading November 20, 2023 →

Thankfully not much in terms of an update today. Eli, Anna, and I spent most of our day hanging out with David. Anna just dotes on David - she loves to caress his head and arm. She also lets us know when he's crying "David's crying" and said she wants to give him a hug … Continue reading November 19, 2023 →

We had some answered prayers today. The results of the CT scan came back, and the pulmonology team does not see any issues with David's lungs. He remarkably does not show any signs of having nutmeg lung. There are some pockets of his lungs that haven't fully opened up, but they should as he grows … Continue reading November 18, 2023 →

Today was our first day in the new unit, and I think it went fairly well. It's a lot quieter up here, and we don't have much reason to leave his room anymore since everything we need is here. The nurses are trying to keep us involved in his care as much as possible, which … Continue reading November 16, 2023 →

Two weeks! David has been amazing us for the last two weeks - it has certainly flown by. Also, once we think we found a rhythm, things get disrupted and a new routine is figured out. He had a big day today, but also a lot of rest. The day started out with him going … Continue reading November 15, 2023 →

David has been very sleepy and calm today - they said he slept really well over night too. He seems to have finally overcome his withdrawal symptoms and is now a happy, sleepy baby. He's completely off of his milrinone which was administered through his IV and switched over to captopril which is an oral … Continue reading November 14, 2023 →

Another great, uneventful day is in the books. David weaned off another one of his IV meds which was replaced with an oral medication. His ventilator was weaned from BiPAP to CPAP settings. He had another chest x-ray this morning, which again showed improvement, and he had an echo to check on his stent placement. … Continue reading November 13, 2023 →