David had a really good day today. The good days are less draining that the tough days. Overnight, they were able to find the right balance of medications to bring his blood pressure down and allow him to find some comfort. He was resting nicely when I arrived this morning and his last few labs … Continue reading November 10, 2023
Author: Jess
Learning about David’s first hours
Yesterday I met the lady who performed David's echocardiograms in the operating room shortly after birth, and she told me a lot more details about what it was like in there. David just went in for his MRI, so I figured I might as well document it now. The fact that she performs so many … Continue reading Learning about David’s first hours
November 9, 2023
Well, today was better than yesterday. It was a great sight to see that David's night nurse had a smile on his face when I arrived, and that David was still extubated. His nurse said he did well throughout the night and was rocking it. It was a huge sigh of relief because it was … Continue reading November 9, 2023
November 8, 2023
David is a week old! Today has been an emotionally taxing day. Looking back on it though, we did make progress in the right direction, but it just doesn't feel like we did. We knew we would hit some stumbling blocks along this journey, but I don't think we were quite ready for them after … Continue reading November 8, 2023
November 7, 2023
Progress updates for today include: More ventilator weans. He had some trial runs today including turning the ventilator off for an hour with no issues. The plan is to be extubated tomorrow. His feeds were increased again. The goal is to get to 50 ml every 3 hours, and he's now at 20 ml. His … Continue reading November 7, 2023
November 6, 2023
Today was fairly uneventful, which means it was a great day. The highlight of the day was holding David. Daddy got to hold David for the first time, and Mommy got to hold David for a second time! After holding him, he was quite alert for quite a while, and it was nice to see … Continue reading November 6, 2023
November 5, 2023
Today's update: David's upper lobe on his right lung is back open! He will continue respiratory therapy to make sure it stays that way. He weaned off of one blood pressure medication and is working on weaning off another His feeds were increased from 5 ml to 8 ml He is still working on decreasing … Continue reading November 5, 2023
November 4, 2023
A few milestones were met today. Eli got to officially meet his baby brother (for a few quick moments), and momma got to hold David for the first time. It brings some positives to this otherwise difficult situation. Eli and Anna both also got some time to play in the playroom, and it would wonderful … Continue reading November 4, 2023
November 3, 2023
Today was a big day for David. He had his first surgery which placed Goretex bands around his pulmonary arteries to restrict blood flow to the lungs. It was hopeful that this would have worked with the plugs placed within the arteries on Wednesday, but David's body wasn't ready for it at that time. It … Continue reading November 3, 2023
November 2, 2023
David has had a fairly uneventful day, and remains relatively stable. His stats are trending in the direction of needing the pulmonary artery bands placed, which is going to happen tomorrow. He is the second surgery scheduled for tomorrow, so we do not have a time. In the meantime, they are trying to control his … Continue reading November 2, 2023