David has been transferred to his room in the CVICU. He did a lot better today than anyone had anticipated, and we are so thankful for everyone's prayers. Adam and I were able to see him a short while ago, and are so impressed with his progress so far. He still has a long road … Continue reading November 1, 2023
Author: Jess
October 30, 2023
We have a new date - November 1st (assuming things do not happen naturally before hand). I'm pretty happy with that date as we can do Halloween as a family and make it as normal as possible for the kids. Originally I was told that date was not possible due to the schedule of the … Continue reading October 30, 2023
October 29, 2023
We got a call this afternoon from one of the MFM doctors - the surgeon was called into an emergency surgery and our C-Section will need to be rescheduled. At this time, we don't know when it will be rescheduled - they are hoping to just postpone it by 24 hours - which would be … Continue reading October 29, 2023
October 27, 2023
We have had our final appointments before David's arrival now. Last week we met with the neonatologist and a NICU social worker. They went over their role in the delivery, and warned us that the room will look like a sea of blue. The neonatologists will be the first ones to assess David after he's … Continue reading October 27, 2023
October 11, 2023
Well, we have a delivery date - October 30th. Adam and I are still processing what this means, and feeling all the emotions that come with that date. I'm relieved that it got moved up from November 6th, since I was concerned about making it that far as Eli and Anna were both born before … Continue reading October 11, 2023
September 29, 2023
Today is world heart day, so it seems fitting that we try to write up what we learned since we last updated. Last Friday, we met with the surgeon, a child family life specialist, and then a member of the cath lab team. The person from the single ventricle team was unable to make it. … Continue reading September 29, 2023
September 21, 2023
We had a plethora of appointments on Tuesday. We started the day with another echocardiogram (echo). I don't believe anything changed since our last echo. After that we met with our cardiologist to go over any questions we had regarding the nutmeg lung diagnosis and discuss where we were at with our thought process so … Continue reading September 21, 2023
September 18, 2023
We posted this initially on Saturday night; however by Sunday evening, we couldn't find the post anymore. We're not sure what happened, but we were also getting some errors when loading the page so we hoped it was a system error and it would come back when resolved. However, it's still not here on Monday … Continue reading September 18, 2023