Well, neuro-surgery finally weighed in on the brain MRI from last week. They recommended a repeat MRI in 2-4 weeks. I'm not really sure which timeframe the team will decide they want to follow. David is requiring more oxygen support and as of this evening he’s back onto some high flow. He had an X-ray … Continue reading May 30, 2024
Author: Jess
May 29, 2024
In some ways, being in the hospital is a time warp. Some days you wonder where the last 3 hours went, and other days you wonder if there is an end in sight. Other times, we are reminded that life continues on outside the hospital. We get so caught up with what's happening within our … Continue reading May 29, 2024
May 28, 2024
Today was a restful, but also quite a busy day for Mr. David. He was laughing up a storm this morning, but neither Adam or I can remember what was so funny, before he fell asleep again. After he woke up, his nurse was going to do all the things she had postponed while he … Continue reading May 28, 2024
May 27, 2024 (and May 26, 2024)
Well, I had a post drafted yesterday, but never had time to review it after needing to reorganize the freezer (which was not on my list of things to do last night). The night ran away from me at that point, so I abandoned ship. Today I'll try to recap both days; however, there are … Continue reading May 27, 2024 (and May 26, 2024)
May 25, 2024
As David's provider summarized it today, the plan for the day was no changes. Although, that wasn't exactly right. She compromised with the doctor apparently about his diuretics and they went up on it, but just slightly. David is still very much fluid overloaded, and his lungs are feeling it. They have him on oxygen, … Continue reading May 25, 2024
May 24, 2024
What a crazy day! During my drive down, the check engine light started flashing, which is exactly what I wanted on this rainy morning when David was leaving the room for some field trips. David was still sleeping at this time, and being about 20 minutes out from the hospital, Adam came and picked me … Continue reading May 24, 2024
May 23, 2024
David's day started off where yesterday left off, but by afternoon he was doing much better. He is super fluid overloaded after his blood yesterday, so today was mostly trying to get some of the fluid off of him. His kidneys are loving the fluid though (his lungs not so much). He was a little … Continue reading May 23, 2024
May 22, 2024
Well, after several good days in a row, it was about time for David to have a less happy day. He had an exciting day with therapies though. He didn't have much change round-wise, but there were lots of discussions about his potential g-tube and what's the next step if his bleeding returns. It sounds … Continue reading May 22, 2024
May 21, 2024
Another good, stable day for David. It's funny, the folks who haven't seen David since last week keep wondering what changed because he's so happy now. The only thing that I can think that has changed was his valium dosage. Whatever it is, since Saturday, he's like a different baby - full of smiles, takes … Continue reading May 21, 2024
May 20, 2024
Today much of the excitement did not occur in David's room - but rather outside of his window. We had just finished rounding on David (I think around 9) and had not yet dispersed when the lights (well, actually everything) went out. The nurses remained calm and sprang into action to check on anyone who … Continue reading May 20, 2024