I would like to say this was another great day for David. He was snoozing in his swing when we arrived today, so Adam and the older kids went down to the family lounge for a snack, while I hung out with David. He woke up around the time they finished their snack - I … Continue reading May 19, 2024
Author: Jess
May 18, 2024
Today was a pretty good day. For the most part, David was happy but also shared his displeasure when being pushed to do things he did not want to do. When I arrived, David was asleep in his wagon - his nurse clearly knows what makes him happy! Once he woke up, he hung out … Continue reading May 18, 2024
May 17, 2024
t's hard to say how David is doing - he still fusses quite a bit when he's not moving around in his wagon. However, it's hard to know if he's uncomfortable about something or just expressing his dislike for his helmet. He seemed to enjoy his mama roo this morning. After enjoying those swings for … Continue reading May 17, 2024
May 16, 2024
Today was a relatively uneventful day for David. When I arrived, I found out that David and I had the same sense of fashion today as we were both wearing our Buffs gear. He was apparently happy early this morning, but by the time I arrived, had returned to his "normal" level of fussiness. We … Continue reading May 16, 2024
May 15, 2024
Today was a day of learning. We met with the transplant team, and they explained the process and everything that goes into being listed, finding a match, and what life looks like after a transplant. There's a lot of information for us to process, and we'll figure it all out in time. We have a … Continue reading May 15, 2024
May 14, 2024
A busy, but less exciting day for David today (thank goodness)! It was actually a really good day for him. He had two field trips off the unit and when he was awake, he was happy and wiggly and just seemed like himself. David kept his nurse busy today, but it was a good busy. … Continue reading May 14, 2024
May 13, 2024
Today was more of a difficult day - but David was a rockstar and handled everything thrown at him. He's the strongest person I know. We do not know God’s plan, but things fell into place in such a way that reminds us He’s been in charge of the timing all along. David was a … Continue reading May 13, 2024
May 12, 2024
David would like to wish all the the motherly figures in his life a Happy Mother's Day! He had a fairly good day. Overnight, his Mama Roo arrived to his room, so we gave it a try this morning, and he loved it. He was full of smiles as he happily bounced away. The kids … Continue reading May 12, 2024
May 11, 2024
There are not many changes for David - the goal of the weekend is to minimize changes and just get him to Monday. David did end up back on high flow a couple of different times today. He was having a little work of breathing and dropping his oxygen saturations. He overcame that and was … Continue reading May 11, 2024
May 10, 2024
I know we initially planned on the cardiology team meeting today in conference to have an in-depth conversation about David's next steps, but it did not happen. It was the planned before he had his brain MRI and cardiac cath scheduled for Monday, both of which will contain valuable pieces of information that could help … Continue reading May 10, 2024