David had a fairly good day. Not the best, but still better than some that he's had lately. I had one goal for David today - to make it to the Dog Pawty in the Endzone with the facility dogs Fern and Inka. However, as fate would have it, David was taking a good nap … Continue reading May 9, 2024
Author: Jess
May 8, 2024
Another day of discomfort for David. At least the morning was. I was hoping that being NPO and then getting 2ml of straight milk with no fortification would help. However, this morning, he was just as uncomfortable as yesterday. I don't think even his ativan helped. However, I think it was because his potassium supplement … Continue reading May 8, 2024
May 7, 2024
Well, David overheard the plans yesterday, and like we thought, he has other plans. This afternoon while I was discussing with a provider and he was in his wagon, one of the nurses nearby said she saw him moving his head back and forth as we were talking, as if he was intently listening in. … Continue reading May 7, 2024
May 6, 2024
David did not have many changes for today. Apparently his lipids were restarted last night since the order was never removed from his chart. So today, they were stopped once again, and David became free from all except his feeding pump again. David was also started back up on digoxin. He will need to be … Continue reading May 6, 2024
May 5, 2024
There's really not much to say about today. David slept in late this morning. Once he awoke, he got his respiratory treatments, and then he had OT. He tolerated tummy time a little better than he has in the past, which was excellent. After OT, he spent quite a bit of time in his tumbleform … Continue reading May 5, 2024
May 4, 2024
David got moved to a new room this evening. Since February 14th, he has called 3122 home, but as of tonight, he gets to call 3124 home. When he was first born, 3124 was his room, and he was on the fast path out of there. Perhaps, this change of scenery is what he needs … Continue reading May 4, 2024
May 3, 2024
Let’s start with the highlights of the day. First, David had the best wagon ever! He did 4 laps around the unit, and as we were finishing the fourth lap, Fern came trotting up. A sheet was found, and then Fern joined David in the wagon and we did a 5th lap with both of … Continue reading May 3, 2024
May 2, 2024
Well here we are. Another day, same results. Before we get there though, let's talk about the highlights. David only had 1 change that came out of rounds this morning - reduce his milrinone again and see what he does. It has a long half-life, so effects won't be noticed right away - and with … Continue reading May 2, 2024
May 1, 2024
Happy half-birthday David! There's just so much I want to say and so much emotion bottled up into today, but it’s also getting late. One year ago, we were likely thinking today would be his first day eating some purees, which would probably be sweet potatoes like his siblings. Six months ago we did not … Continue reading May 1, 2024
April 30, 2024
Today had a lot of happy moments, some sleepy moments, and a few grumpy moments for Mr. David. Somehow, he completely slept through his echo and later his EKG. I don't know how that happened. The last time he was calm for echo was when he screamed for the prior hour and a half getting … Continue reading April 30, 2024