David had a great day - probably his best day in a while. I've never seen him so smiley and happy before. He was cooing and there was a time I felt as if he was close to a giggle. He didn't have very many changes today. Overnight, his oxygen was weaned to 21% (room … Continue reading April 29, 2024
Author: Jess
April 28, 2024
It was another day of a step back, in the hopes that the coming days are steps forward - but you never know with Mr. David. It's definitely not a linear progression, maybe a sinusoidal wave added to a linear equation would be a good way to model his trajectory. Anyway, when I arrived, David was … Continue reading April 28, 2024
April 27, 2024
Today went better than the last couple days. David still had moments of fussiness, but most of the time he was consolable, he had more smiles, and was able to take some naps as well. He's starting to feel better. In my non-expert opinion his discomfort is still related to something with his digestion and … Continue reading April 27, 2024
April 26, 2024
Today was very similar to yesterday in terms of David’s demeanor. Once again his fussiness ruled the day. He seemed very uncomfortable. No one is quite sure as to what is causing the discomfort - is it heart failure, is it digestive, does he have fractures? From what I and others think, it seems to … Continue reading April 26, 2024
April 25, 2024
Fussy, fussy, David. No one knows why he was so irritable today. He wasn't screaming upset, just fussy and didn't want to sleep. I think most of the day was spent trying to comfort him and figure out the reason behind the cries. There was no clear cut reason for the fussiness - no drugs … Continue reading April 25, 2024
April 24, 2024
Today was a day of fun visitors and new adventures. When I arrived, the room was still dark since David was snoozing. I spoke to his nurse who was sitting right outside his room where he could watch both of his patients. He said David slept well through the night, which was excellent. Then I … Continue reading April 24, 2024
April 23, 2024
Well, it was kind of an interesting day today. David started off by being visited by his friends from vascular who placed a peripheral IV in his arm. This was because the folks from CT called and said that they would be ready for him at 8AM, but he needed an IV for the contrast. … Continue reading April 23, 2024
April 22, 2024
Highlights of today include resuming feeds, Fern time, and tummy time "fun". First off, David's feeds. He still has small flecks of blood in his stool, and for now we're just going to accept it and resume his feeds. After consulting the GI doctors, they do not think he has a dairy allergy. They said … Continue reading April 22, 2024
April 21, 2024
Today it was decided to not wake David anymore overnight for his respiratory treatments, so they are now all squeezed into the wakeful hours. It was kind of funny - every time I got to hold David today, a short time later respiratory came in to get him his nebulizers. David does not like his … Continue reading April 21, 2024
April 20, 2024
Well, today was a day of steps forward while simultaneously taking steps backward. So, maybe we didn't end up anywhere - it's hard to say. His respiratory support was weaned slightly - they moved his high flow from 6 liters to 4 liters. His nurse said that's pretty much the last step to not having … Continue reading April 20, 2024