We're happy to report David's nurse who has taken care of him the most was back today. David needs to start giving her some smiles because she has been instrumental in getting him to his current state. He's come so far and everyone is amazed at how he's doing now. David was so excited when … Continue reading April 19, 2024
Author: Jess
April 18, 2024
Very minimal changes for David today. He was on high-flow oxygen all day before being switched back to RAM CPAP tonight. He was on CPAP last night as well. He did really well on his high-flow today, with his only frustration being unable to dislodge the cannula. David's chest/abdominal x-ray looked great today. His right … Continue reading April 18, 2024
April 17, 2024
David got to go to the floor and pet Fern today! That was definitely the highlight of his day. Once he felt how soft she is, a smile came across his face and he started petting her - it was a sight to behold. If only the puppies waiting at home would be as calm … Continue reading April 17, 2024
April 16, 2024
David's cardiologist came and spoke with us first thing this morning. She had spoken to his surgeon since we last spoke yesterday, and since David is progressing, albeit at a snail's pace (my words, not hers), he doesn't want to make any decisions about David's future at this time. He would like to see how … Continue reading April 16, 2024
April 15, 2024
Once again, just slow changes for David today. His x-ray looked great this morning, so they lowered the PEEP of his CPAP to 7. David has always seemed to prefer 8, but his lungs are in a really good spot at this moment. There was talk about weaning some of his treatments, but the last … Continue reading April 15, 2024
April 14, 2024
Today marks 2 months since David’s Norwood surgery. Two months in the CVICU. Two months with a nurse dedicated to only him all hours of the day (and some days two when he was helping train in some of the new/newer nurses to the unit). Last night David did not tolerate his SCUBA, so after … Continue reading April 14, 2024
April 13, 2024
David had a really good day today. It started off a little rocky - he had trouble settling down for his nurse overnight. I forgot to mention they stopped his delirium med that he would get at bedtime last night since he had been on it for a month. His nurse ended up giving it … Continue reading April 13, 2024
April 12, 2024
David's big change is he was on CPAP all day and all last night! After seeing the ventilator today, I realized he still has a PEEP of 8, which he adores, and CPAP just doesn't add any additional PEEP like BiPAP does. BiPAP has a pressure support that's higher for inhaling and a different pressure … Continue reading April 12, 2024
April 11, 2024
Small changes for David today. His feeds had increased fortification added to them - from 22 kcal to 24 kcal. He was on a weaned vent setting for SCUBA last night and did well (12/6) - reduced PEEP even. We know his lungs really appreciate a PEEP of 8 though, so he was on RAM … Continue reading April 11, 2024
April 10, 2024
They weaned David's ventilator setting today, and he was able to stay on the RAM cannula with it. He's still on BiPAP, there was some discussion as to whether he is ready for CPAP, but ultimately, David likes slow movements, so BiPAP it is. He'll go back onto SCUBA tonight at that lower setting as … Continue reading April 10, 2024