Not many changes from yesterday. David's goal is still to try to take off some of his fluids, but he's yet to be negative. They continued the pause of the autowean of his withdrawal meds. He's still agitated and going through withdrawal, so it's not time to wean them yet. His vent setting was reduced … Continue reading April 9, 2024
Author: Jess
April 8, 2024
The analogy I will use to describe today is as follows: we were off on a hike down the trail, but we lost our way (or maybe we ended up on a deer trail). Although, we were heading in the approximate direction, we're going to take a few steps back to find the trail again … Continue reading April 8, 2024
April 7, 2024
It's just another one of those days where not a lot of progress was made, and maybe a step back? There were not many changes today, except to wean his ventilator setting slightly. Well, this lasted all of 1.5-2 hours before David was having faster breathing so they decided to undo the change while he's … Continue reading April 7, 2024
April 6, 2024
No big changes for David today - in fact everything is the same as yesterday. His feeds are still increasing at 1 ml every 6 hours, and his medications that help with his withdrawal continue their auto-wean. Otherwise, he's receiving the same respiratory support he received yesterday. Overall, David seemed happier today, but still slept … Continue reading April 6, 2024
April 5, 2024
David was pretty grumpy today. Most of the day was spent fussing if he was awake, and otherwise sleeping. Otherwise, he did not have a terribly exciting day. On his x-ray this morning, there didn't really appear to be any changes to his lungs. Therefore, they did adjust his ventilator settings on his RAM to … Continue reading April 5, 2024
April 4, 2024
For the most part, not a terribly exciting day, which means it's a pretty good day. The best part is that David's smile has started to return! He has such a great smile - but he's very selective as to who he shows it to, and whether a camera is present or not. David spent … Continue reading April 4, 2024
April 3, 2024
Today was a nice stimulating day for David. He was apparently pretty grumpy overnight and not liking his SCUBA. However, his grumpiness remained after he got it off this morning. Once it was off though, he was able to fully participate in the wear pink day by sporting a pink hat and blanket. Due to … Continue reading April 3, 2024
April 2, 2024
Today was just a fun day for being in the ICU - lots of laughs and lots of smiles. It’s super nice when everyone seems to enjoy their job and they all work together so beautifully. There were not many changes today for David. A slight increase in his feeds - 1 ml every 12 … Continue reading April 2, 2024
April 1, 2024
David is 5 months old today. Time has certainly flown by. Highlights of today included his weekly wound vac change. They say it's healing up nicely and his surgeon stopped by this afternoon and said next week they will likely take the wound vac off and allow it to finish healing without it. David's kidney … Continue reading April 1, 2024
March 31, 2024
Happy Easter! Here's a quick recap of the weekend: Yesterday, March 30th:Slight step back, which is not completely unexpected. Friday David was on RAM all day and SCUBA at night. They tried to do the same on Saturday, but David was a bit more agitated and had an increased work of breathing. He was eventually put … Continue reading March 31, 2024