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Heart Warrior David

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Author: tillyjadam

June 20, 2024

I posted when you entered the world and suprised us all David. Now I do again when you leave us to share your love and amazing joy with those in heaven waiting for you.  Good bye David, we will never fully know how many lives you have touched for the better in these short seven … Continue reading June 20, 2024 →

tillyjadam David 35 Comments June 20, 2024October 25, 2024 1 Minute

June 18, 2024

I am not sure how to start this or what all to say but I wanted to make sure we let everyone who has followed David's amazing life know everything.  He had a CT yesterday which more or less confirmed what the neurologist thought. Large damage and the part of our brain that makes us … Continue reading June 18, 2024 →

tillyjadam David 15 Comments June 18, 2024October 25, 2024 4 Minutes

June 14, 2024

I'm running on an hour and a half of sleep so hopefully this is coherent. Well, I started this post, and I think Adam is going to take it over, so hopefully he can help fill in the details.  Today had a somber tone that followed it around all day. This is absolutely not where … Continue reading June 14, 2024 →

tillyjadam David 7 Comments June 14, 2024October 19, 2024 5 Minutes

June 13, 2024

David is on ECMO. We will be allowed in his room soon hopefully. 

tillyjadam David 1 Comment June 13, 2024October 19, 2024 1 Minute

June 13, 2024

I am in the back of the room while the doctors, nurses and large team work to help David. He is currently getting chest compression as they wait for the ECMO team to arrive to put him on ECMO.  

tillyjadam David 6 Comments June 13, 2024October 19, 2024 1 Minute

June 10, 2024

It is my turn to write a post. So there will probably be some mistakes, grammatical errors and things forgotten, but hopefully it will be ok 😀 .  Overnight last night David slept ok except for a 2 hour stent between 12-2am where he woke up and did quite a bit of coughing and gaging … Continue reading June 10, 2024 →

tillyjadam David 2 Comments June 10, 2024October 15, 2024 4 Minutes

February 27, 2024

Just a mini update.  David is settled in and doing well as I get to sleep in his room.  He is under lots of blankets keeping him warm. A byproduct of them cooling him down for his operation I believe.  

tillyjadam David 4 Comments February 27, 2024August 31, 2024 1 Minute

February 14, 2024 – Update 5

David's Cath procedure was a success.  Dr. Sinha is much happier with his oxygen levels after they did place a Stent at the connection between the shunt and his heart. They will be observing him closely over the next 24 hours to see if there are any effects from the low oxygen. Also these next … Continue reading February 14, 2024 – Update 5 →

tillyjadam David 2 Comments February 14, 2024August 30, 2024 1 Minute

February 14, 2024 – Update 4

We just spoke Dr. Sinha (the surgeon) and got an update on all the happenings today. David is ok, but he's not perfect. He wants David to be perfect before they send him to the ICU.  First they have completed the Norwood procedure. They decided to go with the Sano shunt instead of the BTT … Continue reading February 14, 2024 – Update 4 →

tillyjadam David 7 Comments February 14, 2024August 31, 2024 2 Minutes

November 1, 2023

Jessica is in the recovery room soon to be moved to her final room.  David has made it through the first procedure putting the Stent between the heart chambers and is stable. They will lower the oxygen they give him and see how he responds before later proceeding with potentially putting in flow restrictiors slowing … Continue reading November 1, 2023 →

tillyjadam David 12 Comments November 1, 2023August 21, 2024 1 Minute

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