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February 19, 2024
Today has felt like getting kicked over and over again. Honestly, this is how we anticipated David’s first hospital stay going, but things kept getting better by the day. After knowing David would be getting the Norwood those fears returned, and so far it seems as if something can go wrong, it will. Overnight things…
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February 18, 2024
Today was exactly what we wanted for David – a day of rest. He is starting to build a tolerance to the sedatives it seems. If he so much as moves his fingers or toes, his blood pressure becomes hypotensive, so they have adjusted those to make sure he is calm. Yesterday, he would go…
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February 17, 2024
First off, thank you to everyone who has lifted David up in prayer and love. Here’s what we know at the moment. David will be on ECMO for at least 48 hours. This is giving his heart and lungs a rest and allowing the machine to support him. It was helpful that his chest was…
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February 17, 2024
Not the update I wanted to make today. David was unstable and crashed – code blue was called. He’s currently on the highest form of life support ECMO. Will take all prayers and support for him at this time.
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February 16, 2024
The doctors were pleased as they came by this morning that David was starting the day better off than he did yesterday. He was apparently very purple yesterday, by the time I arrived yesterday, his color was very blotchy with large areas of purple, but not completely purple. Luckily his color has continued to improve.…
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February 15, 2024 – PM Update
David looks much better now than when we arrived, but he’s still in the very critical period. His coloring looks almost normal. I don’t believe he is any worse in any area than he was this morning, and in some areas there has been a little improvement, so the doctors took the small gains as…
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February 15, 2024
David is still in a very critical state. He’s been all over the place and has been hard to control. At this moment, he has 2 dedicated nurses, and a third nurse helping out. The doctor was honest and said she didn’t like how he looked this morning but is hopeful he will look better…
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February 14, 2024 – Update 5
David’s Cath procedure was a success. Dr. Sinha is much happier with his oxygen levels after they did place a Stent at the connection between the shunt and his heart. They will be observing him closely over the next 24 hours to see if there are any effects from the low oxygen. Also these next…
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February 14, 2024 – Update 4
We just spoke Dr. Sinha (the surgeon) and got an update on all the happenings today. David is ok, but he’s not perfect. He wants David to be perfect before they send him to the ICU. First they have completed the Norwood procedure. They decided to go with the Sano shunt instead of the BTT…
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February 14, 2024 – Update 3
We just got word that David is off of Bypass and doing well. It will still take a few hours for them to finish up and for us to get debriefed on the details of how everything went. David did get off bypass 9 minutes before the 2 hour mark!