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February 4, 2024
Not much in terms of an update. David is off of oxygen with dips here and there – especially when he gets upset. He still is not eating orally – but he did eat about 20% of one bottle today and took a couple sips of another. They are still hoping to get a CT…
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February 3, 2024
David has had a rough day – the smiles are few and far between. If he’s not sleeping, chances are he’s screaming. He took one bottle overnight, but has otherwise refused the bottle and screams when it touches his mouth, so most of his food intake and been via the feeding tube today. Something is…
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February 2, 2024
It was national wear red day today, so we all wore red for David. David did end up going in for a cath procedure today. They didn’t do anything other than taking a bunch of pictures and recording a bunch of pressures. The pressures in the pulmonary arteries need to be at a certain level…
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February 1, 2024
Happy 3 months to David. For 3 months he has kept us on our toes wondering what is next, and for three months he has amazed us with what he has overcome. However, today David was readmitted to the hospital. It’s been a long an exhausting day to say the least. In the effort to…
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January 26, 2024
Yesterday was another reminder of how quickly time is flying by. How are we already approaching 7-8 weeks since David’s last cath procedure, so he’s due for another one soon? It had completely fallen off my radar as something he had coming up, but when it was mentioned in clinic, my thoughts went back to…
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January 23, 2024
Since the last update, David has kind of been all over the place. His biggest struggle has been eating. Some days he eats everything put in front of him. Lately though, he’s been leaving a lot in his bottle and either screams or goes to sleep rather than eat more. Some days he has had…
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January 12, 2024
We’ve been keeping busy since last week. The older kiddos have resumed activities which we had put a pause on when David was born. With the uncertainties of where we would be on any given day and the busyness of the holiday season, I didn’t want to add another stressor to our lives. So, Eli…
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January 4, 2024
Happy New Year! David is officially two months old now. He has had some trouble gaining weight since his cath last week. Upon our first hospital discharge we were given a book with everything we are to track along with reasons to call. On New Years Eve, David fit the criteria for two of the…
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December 29, 2023
Clinic day today. Our main cardiologist is out of the country for a couple weeks, so we met with a different cardiologist from the single ventricle team. I thought I had never met him before but he informed me that we had met when David was in the hospital the first time. I’m always amazed…
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December 27, 2023
Yesterday was David’s cath procedure. It ended up being a much longer day than we anticipated, but since David spent the night in the hospital, I opted to catch up on some sleep rather than posting details. We ended up bringing Eli and Anna to the hospital for the procedure, and they did so well! David…