-
November 29, 2023
Great day today with lots of progress made. First off, David gained some weight. The doctor is cautiously optimistic. We’re hoping for a second consecutive day of weight gain tomorrow since David’s usual pattern is up and then down the next day. If he’s up again tomorrow, then he’ll likely be discharged and allowed to…
-
November 28, 2023
Today was a busy and exhausting day. Once again David lost weight over night. His doctor is getting impatient with his weight gain so rather than give the 60 ml every 3 hours one more day, he decided to add the extra fortification today in addition to the added volume from yesterday. His nurse today…
-
November 27, 2023
Once again, not much to report. David’s weight today returned to what it was on Saturday. We have decided to increase his volume per feeding in the hopes that will help him gain weight. He always seems hungry about 1/2 hour before his next scheduled feed, and for many of his feeds he seems to…
-
November 26, 2023
Today David passed his carseat test. It’s one step closer to going home. He had to sit in it for 90 minutes and his respiration rate, heart rate, and oxygen saturation were monitored throughout. However, once again, David lost weight today compared to yesterday. This is going to keep him in the hospital for a…
-
November 25, 2023
No major updates again today. Once again David’s NG tube came out. The nurse was hopeful that the team would be fine with that, but alas, it needed to be replaced. However, today after it came out, David has finished each of his bottles and has even taken all of his medications orally. We’ll ask…
-
November 24, 2023
Not too much in terms of updates. Saw speech again and they observed another feeding and gave tips on how to keep David awake during a feeding. About an hour and a half after that though, David threw up. This was when the cardiology team was in his room during rounds. He was very upset…
-
November 23, 2023
First off, Happy Thanksgiving! I was able to spend a few hours this morning with David. We turned on the Macy’s Thanksgiving Day parade. I think David had his eyes mostly closed, but I tried to show him Chase from Paw Patrol since he’s Eli’s favorite and then Santa at the end. Mr. David was…
-
November 22, 2023
Another uneventful day in the books (as far as David is concerned). Well, mostly uneventful. He turned 3 weeks old today! David continues to work on drinking his full bottle within 30 minutes. If it lasts longer than 30 minutes, then he’ll burn more calories than he is getting, which we do not want to…
-
November 21, 2023
It seems so surreal when everyone who stops by talks about discharge on Monday. We never thought David would know life outside of the hospital, and are excited and nervous for this next adventure. We’re slowing learning more about what life will look like. If he continues to eat well from the bottle, there is…
-
November 20, 2023
We are quickly learning that sometimes when things happen here, they happen very quickly. We were informed this morning that David could be discharged on Wednesday! 😳 I think that was the look on our faces when the doctor mentioned it this morning. A week ago when we were in the market for a new…