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June 5, 2024
There’s really not much to report for today. Apparently David was quite fluid positive yesterday. So much that I almost suspect an error in the reporting. In any case, since his kidneys are still holding at a very good position, his diuretics were increased again. David’s been receiving IV diuretics for a couple weeks now…
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June 4, 2024
David had a fairly good day. When I arrived he was already awake and sitting in his high chair rocking out to Taylor Swift. In fact, he was greeting everyone who walked past his room. His provider thought he should still be sleeping. That’s the thing about Davids – they take 2 morning naps and…
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June 3, 2024
Well, today the doctor decided to order the respiratory virus panel test. That was an intense few hours of our lives. As soon as they tested him, David had to be in isolation. This means our family is pretty much confined to his room – with the biggest issues being no End Zone and no…
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June 2, 2024
Yesterday they made mention a couple of times how David will likely go upstairs this week. Today, David responded with “will I?” Once again David is throwing some curve balls, and no one is quite certain what to make of it. After all of those gaggy episodes yesterday, they opted to stop his protein today.…
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June 1, 2024
Today David turned 7 months! He eventually weaned down to low flow, but not until this afternoon. Really the only change for him today was with his diet – they added in some protein (amino acids I believe). This afternoon David was very gaggy and spitting up a lot. It’s hard to say if they…
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May 31, 2024
Today was kind of an up and down day for David. They were able to wean his oxygen support fairly quickly overnight from 12 liters at 40% oxygen to 3 liters on room air. The nurse overnight thought he may not have needed the high flow, but was afraid to take it off in case…
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May 30, 2024
Well, neuro-surgery finally weighed in on the brain MRI from last week. They recommended a repeat MRI in 2-4 weeks. I’m not really sure which timeframe the team will decide they want to follow. David is requiring more oxygen support and as of this evening he’s back onto some high flow. He had an X-ray…
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May 29, 2024
In some ways, being in the hospital is a time warp. Some days you wonder where the last 3 hours went, and other days you wonder if there is an end in sight. Other times, we are reminded that life continues on outside the hospital. We get so caught up with what’s happening within our…
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May 28, 2024
Today was a restful, but also quite a busy day for Mr. David. He was laughing up a storm this morning, but neither Adam or I can remember what was so funny, before he fell asleep again. After he woke up, his nurse was going to do all the things she had postponed while he…
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May 27, 2024 (and May 26, 2024)
Well, I had a post drafted yesterday, but never had time to review it after needing to reorganize the freezer (which was not on my list of things to do last night). The night ran away from me at that point, so I abandoned ship. Today I’ll try to recap both days; however, there are…