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May 15, 2024
Today was a day of learning. We met with the transplant team, and they explained the process and everything that goes into being listed, finding a match, and what life looks like after a transplant. There’s a lot of information for us to process, and we’ll figure it all out in time. We have a…
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May 14, 2024
A busy, but less exciting day for David today (thank goodness)! It was actually a really good day for him. He had two field trips off the unit and when he was awake, he was happy and wiggly and just seemed like himself. David kept his nurse busy today, but it was a good busy.…
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May 13, 2024
Today was more of a difficult day – but David was a rockstar and handled everything thrown at him. He’s the strongest person I know. We do not know God’s plan, but things fell into place in such a way that reminds us He’s been in charge of the timing all along. David was a…
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May 12, 2024
David would like to wish all the the motherly figures in his life a Happy Mother’s Day! He had a fairly good day. Overnight, his Mama Roo arrived to his room, so we gave it a try this morning, and he loved it. He was full of smiles as he happily bounced away. The kids…
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May 11, 2024
There are not many changes for David – the goal of the weekend is to minimize changes and just get him to Monday. David did end up back on high flow a couple of different times today. He was having a little work of breathing and dropping his oxygen saturations. He overcame that and was…
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May 10, 2024
I know we initially planned on the cardiology team meeting today in conference to have an in-depth conversation about David’s next steps, but it did not happen. It was the planned before he had his brain MRI and cardiac cath scheduled for Monday, both of which will contain valuable pieces of information that could help…
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May 9, 2024
David had a fairly good day. Not the best, but still better than some that he’s had lately. I had one goal for David today – to make it to the Dog Pawty in the Endzone with the facility dogs Fern and Inka. However, as fate would have it, David was taking a good nap…
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May 8, 2024
Another day of discomfort for David. At least the morning was. I was hoping that being NPO and then getting 2ml of straight milk with no fortification would help. However, this morning, he was just as uncomfortable as yesterday. I don’t think even his ativan helped. However, I think it was because his potassium supplement…
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May 7, 2024
Well, David overheard the plans yesterday, and like we thought, he has other plans. This afternoon while I was discussing with a provider and he was in his wagon, one of the nurses nearby said she saw him moving his head back and forth as we were talking, as if he was intently listening in.…
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May 6, 2024
David did not have many changes for today. Apparently his lipids were restarted last night since the order was never removed from his chart. So today, they were stopped once again, and David became free from all except his feeding pump again. David was also started back up on digoxin. He will need to be…