"Three months of breathing clean air, I still miss your dragon smoke" (words modified from David's Godmother Taylor). Three months. Some days are long. Some are short. I just know I never want to forget a single moment we shared together. Also, don't worry - David's smoke was just his nebs which didn't have any … Continue reading September 20, 2024
Category: David
June 27, 2024
One week. It's been one week since we said goodbye to David. I've wanted to post something for a while, but it is a struggle. If anyone is familiar with Randy Pausch's Last Lecture, at the end he said the whole lecture was a head fake. It was not a lecture for those in the … Continue reading June 27, 2024
David’s Obituary
https://www.mattsonfuneralhome.com/obituaries/david-tilly David Walter John Tilly, born on November 1, 2023, in Minneapolis, Minnesota with a congenital heart defect called Hypoplastic Left Heart Syndrome (HLHS). Sadly, he passed away in his parent’s loving embrace on June 20, 2024, at the tender age of seven months. He brought immense joy and love to his family and everyone … Continue reading David’s Obituary
Service Details
The world has lost a bright light. David's memorial service will be on July 8th, 2024. There will be a visitation from 3-6 PM, followed immediately by a service. This will take place at our church St. Paul Lutheran Church in Wyoming, MN.
June 20, 2024
I posted when you entered the world and suprised us all David. Now I do again when you leave us to share your love and amazing joy with those in heaven waiting for you. Good bye David, we will never fully know how many lives you have touched for the better in these short seven … Continue reading June 20, 2024
June 18, 2024
I am not sure how to start this or what all to say but I wanted to make sure we let everyone who has followed David's amazing life know everything. He had a CT yesterday which more or less confirmed what the neurologist thought. Large damage and the part of our brain that makes us … Continue reading June 18, 2024
June 17, 2024
So, I'm sitting here at home and don't know what to do with myself. There is plenty of stuff to do here that has been neglected the last few months since it didn't seem as important as being with David, but my mind is still with David tonight. I was able to spend last night … Continue reading June 17, 2024
June 15, 2024
This is not the post I want to be making. David’s EEG (brain activity monitor) is showing that David’s brain activity is minimal and he has lost the part of the brain that makes him who he is. The part that has made everyone fall in love with him. His brain stem is intact, but … Continue reading June 15, 2024
June 14, 2024
I'm running on an hour and a half of sleep so hopefully this is coherent. Well, I started this post, and I think Adam is going to take it over, so hopefully he can help fill in the details. Today had a somber tone that followed it around all day. This is absolutely not where … Continue reading June 14, 2024
June 13, 2024
David earlier today. No one knows why he crashed. He had gagginess this morning, but had lots of periods of happy play time too. He even made a recording of his heartbeat with music therapy. He received compressions for a long time. Only time will tell how it may have affected his brain and other … Continue reading June 13, 2024