David is still doing well and stable. He's currently on by-pass, and surgery is getting close to complete. They expect to be able to take him off by-pass in less than two hours. Fingers crossed everything continues to go well.  Also, apparently David wasn't super fussy last night - he just didn't want to sleep. 

Adam said David was a little fussy overnight, but slept well in his swing. They were cuddling when I arrived this morning, and David had just had a bath. They connected his IV and then I got my snuggles in. We got a few extra minutes of cuddle time in as they tracked down a … Continue reading February 14, 2024 – Update 1 →

We met with the surgeon today. What I thought was going to be a complex, but otherwise a normal Norwood surgery is in fact not quite that. (Here’s another link detailing the procedure, and this one also briefly mentions the pulmonary artery bands and stents David has.) They had hoped to skip doing the Norwood by itself … Continue reading February 13, 2024 →

Just holding steady today. Of course he had some weight loss. The weight gain yesterday was so large it wasn’t believable, so I wasn't surprised to see the decrease today. However, we’re doing our best to not cause any disturbances with him before his surgery. I had forgotten to mention yesterday that if David is … Continue reading February 12, 2024 →

This weekend was fairly calm - well, as calm as the chaos created by Eli and Anna. On Saturday, David's weight was slightly down, so the team discussed increasing his volume again or holding steady for one more day. I did request we hold for one more day since I've seen a couple large spitups … Continue reading February 11, 2024 →

A few days ago, I told Adam that David would likely have surgery February 15th or the day after Presidents’ Day since most of his major procedures have occurred the day after a holiday. He was born and had his first cath the day after Halloween. He had another cath procedure the day after Christmas. … Continue reading February 9, 2024 – Details →

Today we got the direction and clarity we had been waiting for. I will say I am very happy with the plan that they came up for him, and I'll post more details later because I want to go to bed. Here's a quick update.  David is still in the hospital. He did gain weight … Continue reading February 9, 2024 →

We were very frustrated yesterday and drilled the team with questions today during rounds. They believe David is in a position where he could have gone home today, and we disagreed for a variety of reasons. Mostly, it seems like he will be going home in a worse position than when he arrived and we … Continue reading February 7, 2024 →

Slow and steady progress was made today. For the most part David was a lot happier. He had his CT scan this morning, so we’re eagerly awaiting the decisions that will be made tomorrow in which we'll finally see the next stop on this journey rather than blindly following a path, not knowing where it … Continue reading February 5, 2024 →