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Category: David

June 13, 2024

David is on ECMO. We will be allowed in his room soon hopefully. 

tillyjadam David 1 Comment June 13, 2024October 19, 2024 1 Minute

June 13, 2024

I am in the back of the room while the doctors, nurses and large team work to help David. He is currently getting chest compression as they wait for the ECMO team to arrive to put him on ECMO.  

tillyjadam David 6 Comments June 13, 2024October 19, 2024 1 Minute

June 13, 2024

Adam just informed me David is having rhythm issues and is coding. Please hold him in your prayers. 

Jess David 7 Comments June 13, 2024October 19, 2024 1 Minute

June 12, 2024

David was kind of sleepy today. His day started off with an echo. He mostly slept through it until the probe was near his neck but this is always his least favorite part. Remarkably, he didn't scream his way through it, but just kind of wiggled. He responds very well to holding hands, so we … Continue reading June 12, 2024 →

Jess David 2 Comments June 12, 2024October 19, 2024 5 Minutes

June 11, 2024

This morning started off with a bit of a shocker to us, hearing that David was on the list to head upstairs. After yesterday, we thought they would like him to be a bit more stable before making the move. It turns out, that was the case and David probably has a few more days … Continue reading June 11, 2024 →

Jess David 2 Comments June 11, 2024October 19, 2024 2 Minutes

June 10, 2024

It is my turn to write a post. So there will probably be some mistakes, grammatical errors and things forgotten, but hopefully it will be ok 😀 .  Overnight last night David slept ok except for a 2 hour stent between 12-2am where he woke up and did quite a bit of coughing and gaging … Continue reading June 10, 2024 →

tillyjadam David 2 Comments June 10, 2024October 15, 2024 4 Minutes

June 9, 2024

Another good day for the Tilly kids. David's fun activities included going down to his floor mat where he had tummy time, worked on the sit and standing position, and then just playtime. When he got sleepy, he went back up into bed. This afternoon, Bluey got turned on, and he started wiggling around with … Continue reading June 9, 2024 →

Jess David 4 Comments June 9, 2024October 15, 2024 3 Minutes

June 8, 2024

Today was a fairly uneventful day for David. He napped a lot, and then I tried to squeeze in little bits of activities during the times he was awake. We played with some bananas in the high chair, followed by playing with some toys and reading Little Blue Truck. Afterwards, David returned to his bed … Continue reading June 8, 2024 →

Jess David 6 Comments June 8, 2024October 14, 2024 3 Minutes

June 7, 2024

David is officially listed on the transplant list! I received a call at 1:40 this afternoon saying insurance had given the approval to go ahead and list. After providing them with his SSN, David was added to the list. There has been much rejoicing on the unit and everyone is excited for David as he … Continue reading June 7, 2024 →

Jess David 4 Comments June 7, 2024October 14, 2024 3 Minutes

June 6, 2024

The transplant team met again this afternoon and this time had more data on David. Compared to last week's meeting where we didn't find out the decision until 3.25 hours later, this time we got the decision after a half hour. The entire team was in agreement - that David would benefit from a heart … Continue reading June 6, 2024 →

Jess David 4 Comments June 7, 2024October 14, 2024 4 Minutes

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