So, I'm sitting here at home and don't know what to do with myself. There is plenty of stuff to do here that has been neglected the last few months since it didn't seem as important as being with David, but my mind is still with David tonight. I was able to spend last night … Continue reading June 17, 2024
Tag: Bingo
June 6, 2024
The transplant team met again this afternoon and this time had more data on David. Compared to last week's meeting where we didn't find out the decision until 3.25 hours later, this time we got the decision after a half hour. The entire team was in agreement - that David would benefit from a heart … Continue reading June 6, 2024
May 23, 2024
David's day started off where yesterday left off, but by afternoon he was doing much better. He is super fluid overloaded after his blood yesterday, so today was mostly trying to get some of the fluid off of him. His kidneys are loving the fluid though (his lungs not so much). He was a little … Continue reading May 23, 2024
May 21, 2024
Another good, stable day for David. It's funny, the folks who haven't seen David since last week keep wondering what changed because he's so happy now. The only thing that I can think that has changed was his valium dosage. Whatever it is, since Saturday, he's like a different baby - full of smiles, takes … Continue reading May 21, 2024
May 16, 2024
Today was a relatively uneventful day for David. When I arrived, I found out that David and I had the same sense of fashion today as we were both wearing our Buffs gear. He was apparently happy early this morning, but by the time I arrived, had returned to his "normal" level of fussiness. We … Continue reading May 16, 2024
May 9, 2024
David had a fairly good day. Not the best, but still better than some that he's had lately. I had one goal for David today - to make it to the Dog Pawty in the Endzone with the facility dogs Fern and Inka. However, as fate would have it, David was taking a good nap … Continue reading May 9, 2024
May 2, 2024
Well here we are. Another day, same results. Before we get there though, let's talk about the highlights. David only had 1 change that came out of rounds this morning - reduce his milrinone again and see what he does. It has a long half-life, so effects won't be noticed right away - and with … Continue reading May 2, 2024
April 18, 2024
Very minimal changes for David today. He was on high-flow oxygen all day before being switched back to RAM CPAP tonight. He was on CPAP last night as well. He did really well on his high-flow today, with his only frustration being unable to dislodge the cannula. David's chest/abdominal x-ray looked great today. His right … Continue reading April 18, 2024
April 16, 2024
David's cardiologist came and spoke with us first thing this morning. She had spoken to his surgeon since we last spoke yesterday, and since David is progressing, albeit at a snail's pace (my words, not hers), he doesn't want to make any decisions about David's future at this time. He would like to see how … Continue reading April 16, 2024
April 11, 2024
Small changes for David today. His feeds had increased fortification added to them - from 22 kcal to 24 kcal. He was on a weaned vent setting for SCUBA last night and did well (12/6) - reduced PEEP even. We know his lungs really appreciate a PEEP of 8 though, so he was on RAM … Continue reading April 11, 2024