For the most part, not a terribly exciting day, which means it's a pretty good day. The best part is that David's smile has started to return! He has such a great smile - but he's very selective as to who he shows it to, and whether a camera is present or not. David spent … Continue reading April 4, 2024
Tag: Bingo
March 28, 2024
Small changes again today. First, after 43 days, David's art (artery) line was removed. This was in his left femur, and close to the groin - he was starting to get it dirty every day from his diaper and he started to get a sore near it. It was time for it to come out. … Continue reading March 28, 2024
March 21, 2024
David had a great day! He tolerated a sedation wean over night, and then again this morning. He was doing so well, that they weaned him again this afternoon and may wean it again this evening. He's mostly happy when he's awake and falls asleep calmly. His pneumatosis seems stable. They switched him from 2-view … Continue reading March 21, 2024
March 19, 2024
Not much to report for today - David did well and tolerated a slight weaning one of his sedation meds. He had another bloody stool last night and one this afternoon. X-rays still look fairly good, so they will continue to monitor it, and his feeds are still paused at the moment. He also had … Continue reading March 19, 2024
March 14, 2024
Happy Superhero Day (FKA Pi Day)! We would like to introduce you to Captain Chameleon! His super power is hearing thoughts. We used to think he was just listening to the plans of the day and then telling everyone that was not actually the plan and reminding us that he's in charge. However, we have … Continue reading March 14, 2024
March 7, 2024
Not much of note for today. They are still weaning his ventilation support and have been mostly happy with his progress. They have been giving him some non-IV medications to help him wean off some of the IV sedation. However, David continues to get very upset whenever he starts to wake up. He holds his … Continue reading March 7, 2024
February 29, 2024
How to describe the day? Neither great but not terrible either. There were several times throughout the day that David needed attention. I don't know what it is about him, but he likes it when everyone comes into his room to watch his numbers and try to figure out how to improve them. This morning … Continue reading February 29, 2024
February 22, 2024
David has had an up and down day. Overall, I think he's still in pretty good shape, but he has definitely not given his nurse a lot of down time today (or ever really). David's big goals of the day were to continue to work on getting his lungs opened up, diurese him (lose some … Continue reading February 22, 2024
February 20, 2024
We'll take the wins where we can get them, and today we had some small wins. David continued to have seizures last night. After adding a third seizure medication, they have not noticed any more since 11 PM last night. All the seizure activity has been isolated to the area where there is blood in … Continue reading February 20, 2024
February 8, 2024
Well, today David lost weight again, so his team decided he should spend another day here. The dietician increased his feed volume so we'll see where his weight is tomorrow. I think he's come down with something because he has lots of thick boogies and a new rough cough, and when he cries is sounds … Continue reading February 8, 2024