One week. It's been one week since we said goodbye to David. I've wanted to post something for a while, but it is a struggle. If anyone is familiar with Randy Pausch's Last Lecture, at the end he said the whole lecture was a head fake. It was not a lecture for those in the … Continue reading June 27, 2024
Tag: Cailin
June 20, 2024
I posted when you entered the world and suprised us all David. Now I do again when you leave us to share your love and amazing joy with those in heaven waiting for you. Good bye David, we will never fully know how many lives you have touched for the better in these short seven … Continue reading June 20, 2024
June 17, 2024
So, I'm sitting here at home and don't know what to do with myself. There is plenty of stuff to do here that has been neglected the last few months since it didn't seem as important as being with David, but my mind is still with David tonight. I was able to spend last night … Continue reading June 17, 2024
June 14, 2024
I'm running on an hour and a half of sleep so hopefully this is coherent. Well, I started this post, and I think Adam is going to take it over, so hopefully he can help fill in the details. Today had a somber tone that followed it around all day. This is absolutely not where … Continue reading June 14, 2024
June 6, 2024
The transplant team met again this afternoon and this time had more data on David. Compared to last week's meeting where we didn't find out the decision until 3.25 hours later, this time we got the decision after a half hour. The entire team was in agreement - that David would benefit from a heart … Continue reading June 6, 2024
June 2, 2024
Yesterday they made mention a couple of times how David will likely go upstairs this week. Today, David responded with “will I?” Once again David is throwing some curve balls, and no one is quite certain what to make of it. After all of those gaggy episodes yesterday, they opted to stop his protein today. … Continue reading June 2, 2024
June 1, 2024
Today David turned 7 months! He eventually weaned down to low flow, but not until this afternoon. Really the only change for him today was with his diet - they added in some protein (amino acids I believe). This afternoon David was very gaggy and spitting up a lot. It’s hard to say if they … Continue reading June 1, 2024
May 29, 2024
In some ways, being in the hospital is a time warp. Some days you wonder where the last 3 hours went, and other days you wonder if there is an end in sight. Other times, we are reminded that life continues on outside the hospital. We get so caught up with what's happening within our … Continue reading May 29, 2024
May 16, 2024
Today was a relatively uneventful day for David. When I arrived, I found out that David and I had the same sense of fashion today as we were both wearing our Buffs gear. He was apparently happy early this morning, but by the time I arrived, had returned to his "normal" level of fussiness. We … Continue reading May 16, 2024
May 15, 2024
Today was a day of learning. We met with the transplant team, and they explained the process and everything that goes into being listed, finding a match, and what life looks like after a transplant. There's a lot of information for us to process, and we'll figure it all out in time. We have a … Continue reading May 15, 2024