David had a great day - probably his best day in a while. I've never seen him so smiley and happy before. He was cooing and there was a time I felt as if he was close to a giggle. He didn't have very many changes today. Overnight, his oxygen was weaned to 21% (room … Continue reading April 29, 2024
Tag: Cailin
April 25, 2024
Fussy, fussy, David. No one knows why he was so irritable today. He wasn't screaming upset, just fussy and didn't want to sleep. I think most of the day was spent trying to comfort him and figure out the reason behind the cries. There was no clear cut reason for the fussiness - no drugs … Continue reading April 25, 2024
April 24, 2024
Today was a day of fun visitors and new adventures. When I arrived, the room was still dark since David was snoozing. I spoke to his nurse who was sitting right outside his room where he could watch both of his patients. He said David slept well through the night, which was excellent. Then I … Continue reading April 24, 2024
April 21, 2024
Today it was decided to not wake David anymore overnight for his respiratory treatments, so they are now all squeezed into the wakeful hours. It was kind of funny - every time I got to hold David today, a short time later respiratory came in to get him his nebulizers. David does not like his … Continue reading April 21, 2024
April 20, 2024
Well, today was a day of steps forward while simultaneously taking steps backward. So, maybe we didn't end up anywhere - it's hard to say. His respiratory support was weaned slightly - they moved his high flow from 6 liters to 4 liters. His nurse said that's pretty much the last step to not having … Continue reading April 20, 2024
April 19, 2024
We're happy to report David's nurse who has taken care of him the most was back today. David needs to start giving her some smiles because she has been instrumental in getting him to his current state. He's come so far and everyone is amazed at how he's doing now. David was so excited when … Continue reading April 19, 2024
April 3, 2024
Today was a nice stimulating day for David. He was apparently pretty grumpy overnight and not liking his SCUBA. However, his grumpiness remained after he got it off this morning. Once it was off though, he was able to fully participate in the wear pink day by sporting a pink hat and blanket. Due to … Continue reading April 3, 2024
April 2, 2024
Today was just a fun day for being in the ICU - lots of laughs and lots of smiles. It’s super nice when everyone seems to enjoy their job and they all work together so beautifully. There were not many changes today for David. A slight increase in his feeds - 1 ml every 12 … Continue reading April 2, 2024
March 31, 2024
Happy Easter! Here's a quick recap of the weekend: Yesterday, March 30th:Slight step back, which is not completely unexpected. Friday David was on RAM all day and SCUBA at night. They tried to do the same on Saturday, but David was a bit more agitated and had an increased work of breathing. He was eventually put … Continue reading March 31, 2024
March 29, 2024
David has had another day with not a lot of changes. These are good days. He was super excited to have the nurse who has cared for him the most back today, and gave her a few of his rare smiles. The plan for today was the same as yesterday - RAM during the day … Continue reading March 29, 2024