David was kind of sleepy today. His day started off with an echo. He mostly slept through it until the probe was near his neck but this is always his least favorite part. Remarkably, he didn't scream his way through it, but just kind of wiggled. He responds very well to holding hands, so we … Continue reading June 12, 2024
Tag: Clare
June 10, 2024
It is my turn to write a post. So there will probably be some mistakes, grammatical errors and things forgotten, but hopefully it will be ok 😀 . Overnight last night David slept ok except for a 2 hour stent between 12-2am where he woke up and did quite a bit of coughing and gaging … Continue reading June 10, 2024
May 31, 2024
Today was kind of an up and down day for David. They were able to wean his oxygen support fairly quickly overnight from 12 liters at 40% oxygen to 3 liters on room air. The nurse overnight thought he may not have needed the high flow, but was afraid to take it off in case … Continue reading May 31, 2024
May 23, 2024
David's day started off where yesterday left off, but by afternoon he was doing much better. He is super fluid overloaded after his blood yesterday, so today was mostly trying to get some of the fluid off of him. His kidneys are loving the fluid though (his lungs not so much). He was a little … Continue reading May 23, 2024
May 21, 2024
Another good, stable day for David. It's funny, the folks who haven't seen David since last week keep wondering what changed because he's so happy now. The only thing that I can think that has changed was his valium dosage. Whatever it is, since Saturday, he's like a different baby - full of smiles, takes … Continue reading May 21, 2024
May 16, 2024
Today was a relatively uneventful day for David. When I arrived, I found out that David and I had the same sense of fashion today as we were both wearing our Buffs gear. He was apparently happy early this morning, but by the time I arrived, had returned to his "normal" level of fussiness. We … Continue reading May 16, 2024
May 15, 2024
Today was a day of learning. We met with the transplant team, and they explained the process and everything that goes into being listed, finding a match, and what life looks like after a transplant. There's a lot of information for us to process, and we'll figure it all out in time. We have a … Continue reading May 15, 2024
May 6, 2024
David did not have many changes for today. Apparently his lipids were restarted last night since the order was never removed from his chart. So today, they were stopped once again, and David became free from all except his feeding pump again. David was also started back up on digoxin. He will need to be … Continue reading May 6, 2024
May 2, 2024
Well here we are. Another day, same results. Before we get there though, let's talk about the highlights. David only had 1 change that came out of rounds this morning - reduce his milrinone again and see what he does. It has a long half-life, so effects won't be noticed right away - and with … Continue reading May 2, 2024
April 29, 2024
David had a great day - probably his best day in a while. I've never seen him so smiley and happy before. He was cooing and there was a time I felt as if he was close to a giggle. He didn't have very many changes today. Overnight, his oxygen was weaned to 21% (room … Continue reading April 29, 2024