Highlights of today include resuming feeds, Fern time, and tummy time "fun". First off, David's feeds. He still has small flecks of blood in his stool, and for now we're just going to accept it and resume his feeds. After consulting the GI doctors, they do not think he has a dairy allergy. They said … Continue reading April 22, 2024
Tag: Clare
April 17, 2024
David got to go to the floor and pet Fern today! That was definitely the highlight of his day. Once he felt how soft she is, a smile came across his face and he started petting her - it was a sight to behold. If only the puppies waiting at home would be as calm … Continue reading April 17, 2024
April 15, 2024
Once again, just slow changes for David today. His x-ray looked great this morning, so they lowered the PEEP of his CPAP to 7. David has always seemed to prefer 8, but his lungs are in a really good spot at this moment. There was talk about weaning some of his treatments, but the last … Continue reading April 15, 2024
April 11, 2024
Small changes for David today. His feeds had increased fortification added to them - from 22 kcal to 24 kcal. He was on a weaned vent setting for SCUBA last night and did well (12/6) - reduced PEEP even. We know his lungs really appreciate a PEEP of 8 though, so he was on RAM … Continue reading April 11, 2024
April 10, 2024
They weaned David's ventilator setting today, and he was able to stay on the RAM cannula with it. He's still on BiPAP, there was some discussion as to whether he is ready for CPAP, but ultimately, David likes slow movements, so BiPAP it is. He'll go back onto SCUBA tonight at that lower setting as … Continue reading April 10, 2024
April 8, 2024
The analogy I will use to describe today is as follows: we were off on a hike down the trail, but we lost our way (or maybe we ended up on a deer trail). Although, we were heading in the approximate direction, we're going to take a few steps back to find the trail again … Continue reading April 8, 2024