One week. It's been one week since we said goodbye to David. I've wanted to post something for a while, but it is a struggle. If anyone is familiar with Randy Pausch's Last Lecture, at the end he said the whole lecture was a head fake. It was not a lecture for those in the … Continue reading June 27, 2024
Tag: Dani
June 20, 2024
I posted when you entered the world and suprised us all David. Now I do again when you leave us to share your love and amazing joy with those in heaven waiting for you. Good bye David, we will never fully know how many lives you have touched for the better in these short seven … Continue reading June 20, 2024
June 18, 2024
I am not sure how to start this or what all to say but I wanted to make sure we let everyone who has followed David's amazing life know everything. He had a CT yesterday which more or less confirmed what the neurologist thought. Large damage and the part of our brain that makes us … Continue reading June 18, 2024
June 17, 2024
So, I'm sitting here at home and don't know what to do with myself. There is plenty of stuff to do here that has been neglected the last few months since it didn't seem as important as being with David, but my mind is still with David tonight. I was able to spend last night … Continue reading June 17, 2024
June 8, 2024
Today was a fairly uneventful day for David. He napped a lot, and then I tried to squeeze in little bits of activities during the times he was awake. We played with some bananas in the high chair, followed by playing with some toys and reading Little Blue Truck. Afterwards, David returned to his bed … Continue reading June 8, 2024
May 23, 2024
David's day started off where yesterday left off, but by afternoon he was doing much better. He is super fluid overloaded after his blood yesterday, so today was mostly trying to get some of the fluid off of him. His kidneys are loving the fluid though (his lungs not so much). He was a little … Continue reading May 23, 2024
May 22, 2024
Well, after several good days in a row, it was about time for David to have a less happy day. He had an exciting day with therapies though. He didn't have much change round-wise, but there were lots of discussions about his potential g-tube and what's the next step if his bleeding returns. It sounds … Continue reading May 22, 2024
May 19, 2024
I would like to say this was another great day for David. He was snoozing in his swing when we arrived today, so Adam and the older kids went down to the family lounge for a snack, while I hung out with David. He woke up around the time they finished their snack - I … Continue reading May 19, 2024
May 18, 2024
Today was a pretty good day. For the most part, David was happy but also shared his displeasure when being pushed to do things he did not want to do. When I arrived, David was asleep in his wagon - his nurse clearly knows what makes him happy! Once he woke up, he hung out … Continue reading May 18, 2024
May 17, 2024
t's hard to say how David is doing - he still fusses quite a bit when he's not moving around in his wagon. However, it's hard to know if he's uncomfortable about something or just expressing his dislike for his helmet. He seemed to enjoy his mama roo this morning. After enjoying those swings for … Continue reading May 17, 2024