I don't want to speak too soon, but it was a fairly uneventful day. Overnight, David missed his friends and invited everyone into his room to check out his arrhythmia. It turned out the solution was to just unplug him from the pacer.He was fairly calm today - definitely showing emotion when he does not … Continue reading March 5, 2024
Tag: Dani
March 4, 2024
I'm counting today as a success. They took David back to the operating room around 1 PM today, and by the time he returned around 3:30, his sternum had been reattached and most of his muscle and skin closed. This was more than his surgeon anticipated he would tolerate, which was wonderful news. There are … Continue reading March 4, 2024
February 29, 2024
How to describe the day? Neither great but not terrible either. There were several times throughout the day that David needed attention. I don't know what it is about him, but he likes it when everyone comes into his room to watch his numbers and try to figure out how to improve them. This morning … Continue reading February 29, 2024
February 28, 2024
David had another good day! Overnight he had some small swings in his blood pressure but overall he was happy. He wasn't peeing as much as they would like overnight but after hearing that while the doctors and nurses did their rounds he started to pee more. However they would like to increase it a … Continue reading February 28, 2024
February 25, 2024
Today was an okay day. We started and ended pretty much in the same place, yet there were lots of procedures in the middle. David’s chest X-ray this morning showed improvement on his right lung, but his left lung remained unchanged. His pulmonologist is taking credit for the right lung. She was back to give … Continue reading February 25, 2024
February 24, 2024
David had quite an exciting overnight, and then he's been resting since. Since Adam spends the night with David, this is what he detailed. At around 9:30pm his nurse noticed a puddle of blood on his bedding. He changed David's bedding and then found it was still bleeding and not left over from earlier in … Continue reading February 24, 2024
February 23, 2024 – Update 4
We apparently got a slightly different story from the nurses versus the doctors who did David's procedure. So this is what we know about how David's day went (to the best of my memory)... When David arrived in the cath lab, his oxygen saturations were in the 50s. He ended up not getting the bronchoscopy … Continue reading February 23, 2024 – Update 4
February 23, 2024 – Update 3
We just got word that David is back on ECMO. The shunt and pulmonary arteries all looked good. We're not really sure what this means for moving forward. The EEG will be reattached when he comes back as well.
February 23, 2024 – Update 2
David left for the cath lab at around 1:30. Before he left, his nurse inked us up. In the cath lab, David will first receive a bronchoscopy to hopefully open up his airways. He still has collapsed areas in each of his lungs, so this should hopefully help with that. After that, the cath will … Continue reading February 23, 2024 – Update 2
February 23, 2024 – Update 1
David's chest has been closed up. His oxygen saturations are very low. They have tried doing a bunch of troubleshooting including another bronchoscopy. They do not see what is causing these low saturations, so he's going to go to the cath lab for further investigation. update: bronch will happen in the cath lab. Currently prepping … Continue reading February 23, 2024 – Update 1