Lots of small changes for little David today. I had a detailed conversation with a nurse practitioner this morning and she explained many of the things that are happening with him. Ultimately, it ended up being his heart is the trickiest thing to manage at this point. His blood pressure and heart rate start to … Continue reading November 12, 2023
Tag: Dani
November 11, 2023
Today was a day of mixed emotions. David himself had a great day! He got in lots of snuggles with Mommy and Daddy, and both of his siblings got to visit him. This was Anna's first time meeting him and she absolutely loved him. David also had OT for some more massages and stretches, and … Continue reading November 11, 2023
November 10, 2023
David had a really good day today. The good days are less draining that the tough days. Overnight, they were able to find the right balance of medications to bring his blood pressure down and allow him to find some comfort. He was resting nicely when I arrived this morning and his last few labs … Continue reading November 10, 2023