One week. It's been one week since we said goodbye to David. I've wanted to post something for a while, but it is a struggle. If anyone is familiar with Randy Pausch's Last Lecture, at the end he said the whole lecture was a head fake. It was not a lecture for those in the … Continue reading June 27, 2024
Tag: Demi
June 20, 2024
I posted when you entered the world and suprised us all David. Now I do again when you leave us to share your love and amazing joy with those in heaven waiting for you. Good bye David, we will never fully know how many lives you have touched for the better in these short seven … Continue reading June 20, 2024
June 18, 2024
I am not sure how to start this or what all to say but I wanted to make sure we let everyone who has followed David's amazing life know everything. He had a CT yesterday which more or less confirmed what the neurologist thought. Large damage and the part of our brain that makes us … Continue reading June 18, 2024
June 17, 2024
So, I'm sitting here at home and don't know what to do with myself. There is plenty of stuff to do here that has been neglected the last few months since it didn't seem as important as being with David, but my mind is still with David tonight. I was able to spend last night … Continue reading June 17, 2024
June 13, 2024
David earlier today. No one knows why he crashed. He had gagginess this morning, but had lots of periods of happy play time too. He even made a recording of his heartbeat with music therapy. He received compressions for a long time. Only time will tell how it may have affected his brain and other … Continue reading June 13, 2024
May 27, 2024 (and May 26, 2024)
Well, I had a post drafted yesterday, but never had time to review it after needing to reorganize the freezer (which was not on my list of things to do last night). The night ran away from me at that point, so I abandoned ship. Today I'll try to recap both days; however, there are … Continue reading May 27, 2024 (and May 26, 2024)
April 30, 2024
Today had a lot of happy moments, some sleepy moments, and a few grumpy moments for Mr. David. Somehow, he completely slept through his echo and later his EKG. I don't know how that happened. The last time he was calm for echo was when he screamed for the prior hour and a half getting … Continue reading April 30, 2024
April 26, 2024
Today was very similar to yesterday in terms of David’s demeanor. Once again his fussiness ruled the day. He seemed very uncomfortable. No one is quite sure as to what is causing the discomfort - is it heart failure, is it digestive, does he have fractures? From what I and others think, it seems to … Continue reading April 26, 2024
April 8, 2024
The analogy I will use to describe today is as follows: we were off on a hike down the trail, but we lost our way (or maybe we ended up on a deer trail). Although, we were heading in the approximate direction, we're going to take a few steps back to find the trail again … Continue reading April 8, 2024
April 7, 2024
It's just another one of those days where not a lot of progress was made, and maybe a step back? There were not many changes today, except to wean his ventilator setting slightly. Well, this lasted all of 1.5-2 hours before David was having faster breathing so they decided to undo the change while he's … Continue reading April 7, 2024