One week. It's been one week since we said goodbye to David. I've wanted to post something for a while, but it is a struggle. If anyone is familiar with Randy Pausch's Last Lecture, at the end he said the whole lecture was a head fake. It was not a lecture for those in the … Continue reading June 27, 2024
Tag: Diana
June 12, 2024
David was kind of sleepy today. His day started off with an echo. He mostly slept through it until the probe was near his neck but this is always his least favorite part. Remarkably, he didn't scream his way through it, but just kind of wiggled. He responds very well to holding hands, so we … Continue reading June 12, 2024
June 11, 2024
This morning started off with a bit of a shocker to us, hearing that David was on the list to head upstairs. After yesterday, we thought they would like him to be a bit more stable before making the move. It turns out, that was the case and David probably has a few more days … Continue reading June 11, 2024
June 6, 2024
The transplant team met again this afternoon and this time had more data on David. Compared to last week's meeting where we didn't find out the decision until 3.25 hours later, this time we got the decision after a half hour. The entire team was in agreement - that David would benefit from a heart … Continue reading June 6, 2024
May 13, 2024
Today was more of a difficult day - but David was a rockstar and handled everything thrown at him. He's the strongest person I know. We do not know God’s plan, but things fell into place in such a way that reminds us He’s been in charge of the timing all along. David was a … Continue reading May 13, 2024
May 10, 2024
I know we initially planned on the cardiology team meeting today in conference to have an in-depth conversation about David's next steps, but it did not happen. It was the planned before he had his brain MRI and cardiac cath scheduled for Monday, both of which will contain valuable pieces of information that could help … Continue reading May 10, 2024
April 28, 2024
It was another day of a step back, in the hopes that the coming days are steps forward - but you never know with Mr. David. It's definitely not a linear progression, maybe a sinusoidal wave added to a linear equation would be a good way to model his trajectory. Anyway, when I arrived, David was … Continue reading April 28, 2024
November 12, 2023
Lots of small changes for little David today. I had a detailed conversation with a nurse practitioner this morning and she explained many of the things that are happening with him. Ultimately, it ended up being his heart is the trickiest thing to manage at this point. His blood pressure and heart rate start to … Continue reading November 12, 2023