David went back to the OR at 3:30. His surgeon speculated that it could take an hour if David was able to come off of ECMO and needed nothing else, or else 3-4 hours if he needed the central shunt. I eventually left Adam at the hospital around 9:30 because I had a few things … Continue reading February 26, 2024 – Update 2
Tag: ECMO
February 26, 2024 – Update 1
Not much to say so far. David received a bronch this morning and it seemed to clear out his lungs a little bit. Neurology has not seen any seizure activity so far. Around 3:30, David was taken back to the operating room to attempt ECMO decannulation. It sounds like, David still was not able to … Continue reading February 26, 2024 – Update 1
February 25, 2024
Today was an okay day. We started and ended pretty much in the same place, yet there were lots of procedures in the middle. David’s chest X-ray this morning showed improvement on his right lung, but his left lung remained unchanged. His pulmonologist is taking credit for the right lung. She was back to give … Continue reading February 25, 2024
February 24, 2024
David had quite an exciting overnight, and then he's been resting since. Since Adam spends the night with David, this is what he detailed. At around 9:30pm his nurse noticed a puddle of blood on his bedding. He changed David's bedding and then found it was still bleeding and not left over from earlier in … Continue reading February 24, 2024
February 23, 2024 – Update 4
We apparently got a slightly different story from the nurses versus the doctors who did David's procedure. So this is what we know about how David's day went (to the best of my memory)... When David arrived in the cath lab, his oxygen saturations were in the 50s. He ended up not getting the bronchoscopy … Continue reading February 23, 2024 – Update 4
February 23, 2024 – Update 3
We just got word that David is back on ECMO. The shunt and pulmonary arteries all looked good. We're not really sure what this means for moving forward. The EEG will be reattached when he comes back as well.
February 23, 2024 – Update 2
David left for the cath lab at around 1:30. Before he left, his nurse inked us up. In the cath lab, David will first receive a bronchoscopy to hopefully open up his airways. He still has collapsed areas in each of his lungs, so this should hopefully help with that. After that, the cath will … Continue reading February 23, 2024 – Update 2
February 23, 2024 – Update 1
David's chest has been closed up. His oxygen saturations are very low. They have tried doing a bunch of troubleshooting including another bronchoscopy. They do not see what is causing these low saturations, so he's going to go to the cath lab for further investigation. update: bronch will happen in the cath lab. Currently prepping … Continue reading February 23, 2024 – Update 1
February 21, 2024
So, there are certain words we don't use around David anymore, and no one trusts him either. He likes to prove everyone wrong, both good and bad. We are one week post-surgery today, and we made steps in the right direction - David is off ECMO! He's maintaining all on his own his blood pressure, … Continue reading February 21, 2024
February 20, 2024
We'll take the wins where we can get them, and today we had some small wins. David continued to have seizures last night. After adding a third seizure medication, they have not noticed any more since 11 PM last night. All the seizure activity has been isolated to the area where there is blood in … Continue reading February 20, 2024