Let’s start with the highlights of the day. First, David had the best wagon ever! He did 4 laps around the unit, and as we were finishing the fourth lap, Fern came trotting up. A sheet was found, and then Fern joined David in the wagon and we did a 5th lap with both of … Continue reading May 3, 2024
Tag: Fern
May 2, 2024
Well here we are. Another day, same results. Before we get there though, let's talk about the highlights. David only had 1 change that came out of rounds this morning - reduce his milrinone again and see what he does. It has a long half-life, so effects won't be noticed right away - and with … Continue reading May 2, 2024
May 1, 2024
Happy half-birthday David! There's just so much I want to say and so much emotion bottled up into today, but it’s also getting late. One year ago, we were likely thinking today would be his first day eating some purees, which would probably be sweet potatoes like his siblings. Six months ago we did not … Continue reading May 1, 2024
April 26, 2024
Today was very similar to yesterday in terms of David’s demeanor. Once again his fussiness ruled the day. He seemed very uncomfortable. No one is quite sure as to what is causing the discomfort - is it heart failure, is it digestive, does he have fractures? From what I and others think, it seems to … Continue reading April 26, 2024
April 24, 2024
Today was a day of fun visitors and new adventures. When I arrived, the room was still dark since David was snoozing. I spoke to his nurse who was sitting right outside his room where he could watch both of his patients. He said David slept well through the night, which was excellent. Then I … Continue reading April 24, 2024
April 23, 2024
Well, it was kind of an interesting day today. David started off by being visited by his friends from vascular who placed a peripheral IV in his arm. This was because the folks from CT called and said that they would be ready for him at 8AM, but he needed an IV for the contrast. … Continue reading April 23, 2024
April 22, 2024
Highlights of today include resuming feeds, Fern time, and tummy time "fun". First off, David's feeds. He still has small flecks of blood in his stool, and for now we're just going to accept it and resume his feeds. After consulting the GI doctors, they do not think he has a dairy allergy. They said … Continue reading April 22, 2024
April 18, 2024
Very minimal changes for David today. He was on high-flow oxygen all day before being switched back to RAM CPAP tonight. He was on CPAP last night as well. He did really well on his high-flow today, with his only frustration being unable to dislodge the cannula. David's chest/abdominal x-ray looked great today. His right … Continue reading April 18, 2024
April 17, 2024
David got to go to the floor and pet Fern today! That was definitely the highlight of his day. Once he felt how soft she is, a smile came across his face and he started petting her - it was a sight to behold. If only the puppies waiting at home would be as calm … Continue reading April 17, 2024
April 15, 2024
Once again, just slow changes for David today. His x-ray looked great this morning, so they lowered the PEEP of his CPAP to 7. David has always seemed to prefer 8, but his lungs are in a really good spot at this moment. There was talk about weaning some of his treatments, but the last … Continue reading April 15, 2024