For the most part, not a terribly exciting day, which means it's a pretty good day. The best part is that David's smile has started to return! He has such a great smile - but he's very selective as to who he shows it to, and whether a camera is present or not. David spent … Continue reading April 4, 2024
Tag: Fern
March 21, 2024
David had a great day! He tolerated a sedation wean over night, and then again this morning. He was doing so well, that they weaned him again this afternoon and may wean it again this evening. He's mostly happy when he's awake and falls asleep calmly. His pneumatosis seems stable. They switched him from 2-view … Continue reading March 21, 2024
March 7, 2024
Not much of note for today. They are still weaning his ventilation support and have been mostly happy with his progress. They have been giving him some non-IV medications to help him wean off some of the IV sedation. However, David continues to get very upset whenever he starts to wake up. He holds his … Continue reading March 7, 2024
February 29, 2024
How to describe the day? Neither great but not terrible either. There were several times throughout the day that David needed attention. I don't know what it is about him, but he likes it when everyone comes into his room to watch his numbers and try to figure out how to improve them. This morning … Continue reading February 29, 2024
February 21, 2024
So, there are certain words we don't use around David anymore, and no one trusts him either. He likes to prove everyone wrong, both good and bad. We are one week post-surgery today, and we made steps in the right direction - David is off ECMO! He's maintaining all on his own his blood pressure, … Continue reading February 21, 2024
February 20, 2024
We'll take the wins where we can get them, and today we had some small wins. David continued to have seizures last night. After adding a third seizure medication, they have not noticed any more since 11 PM last night. All the seizure activity has been isolated to the area where there is blood in … Continue reading February 20, 2024
February 19, 2024
Today has felt like getting kicked over and over again. Honestly, this is how we anticipated David’s first hospital stay going, but things kept getting better by the day. After knowing David would be getting the Norwood those fears returned, and so far it seems as if something can go wrong, it will. Overnight things … Continue reading February 19, 2024
November 10, 2023
David had a really good day today. The good days are less draining that the tough days. Overnight, they were able to find the right balance of medications to bring his blood pressure down and allow him to find some comfort. He was resting nicely when I arrived this morning and his last few labs … Continue reading November 10, 2023