I am not sure how to start this or what all to say but I wanted to make sure we let everyone who has followed David's amazing life know everything. He had a CT yesterday which more or less confirmed what the neurologist thought. Large damage and the part of our brain that makes us … Continue reading June 18, 2024
Tag: Hannah
April 29, 2024
David had a great day - probably his best day in a while. I've never seen him so smiley and happy before. He was cooing and there was a time I felt as if he was close to a giggle. He didn't have very many changes today. Overnight, his oxygen was weaned to 21% (room … Continue reading April 29, 2024
April 23, 2024
Well, it was kind of an interesting day today. David started off by being visited by his friends from vascular who placed a peripheral IV in his arm. This was because the folks from CT called and said that they would be ready for him at 8AM, but he needed an IV for the contrast. … Continue reading April 23, 2024
April 22, 2024
Highlights of today include resuming feeds, Fern time, and tummy time "fun". First off, David's feeds. He still has small flecks of blood in his stool, and for now we're just going to accept it and resume his feeds. After consulting the GI doctors, they do not think he has a dairy allergy. They said … Continue reading April 22, 2024
April 15, 2024
Once again, just slow changes for David today. His x-ray looked great this morning, so they lowered the PEEP of his CPAP to 7. David has always seemed to prefer 8, but his lungs are in a really good spot at this moment. There was talk about weaning some of his treatments, but the last … Continue reading April 15, 2024
April 9, 2024
Not many changes from yesterday. David's goal is still to try to take off some of his fluids, but he's yet to be negative. They continued the pause of the autowean of his withdrawal meds. He's still agitated and going through withdrawal, so it's not time to wean them yet. His vent setting was reduced … Continue reading April 9, 2024
April 3, 2024
Today was a nice stimulating day for David. He was apparently pretty grumpy overnight and not liking his SCUBA. However, his grumpiness remained after he got it off this morning. Once it was off though, he was able to fully participate in the wear pink day by sporting a pink hat and blanket. Due to … Continue reading April 3, 2024
March 26, 2024
Today, David's right upper lobe of his lung is more collapsed, so to try to get that opened up David is now on SCUBA for 4 hours followed by RAM (I think this is the term they used - I'm not sure if it is BiPAP or another setting but it's with the nasal cannula) … Continue reading March 26, 2024