One week. It's been one week since we said goodbye to David. I've wanted to post something for a while, but it is a struggle. If anyone is familiar with Randy Pausch's Last Lecture, at the end he said the whole lecture was a head fake. It was not a lecture for those in the … Continue reading June 27, 2024
Tag: Kyle
June 15, 2024
This is not the post I want to be making. David’s EEG (brain activity monitor) is showing that David’s brain activity is minimal and he has lost the part of the brain that makes him who he is. The part that has made everyone fall in love with him. His brain stem is intact, but … Continue reading June 15, 2024
June 14, 2024
I'm running on an hour and a half of sleep so hopefully this is coherent. Well, I started this post, and I think Adam is going to take it over, so hopefully he can help fill in the details. Today had a somber tone that followed it around all day. This is absolutely not where … Continue reading June 14, 2024
May 13, 2024
Today was more of a difficult day - but David was a rockstar and handled everything thrown at him. He's the strongest person I know. We do not know God’s plan, but things fell into place in such a way that reminds us He’s been in charge of the timing all along. David was a … Continue reading May 13, 2024
May 5, 2024
There's really not much to say about today. David slept in late this morning. Once he awoke, he got his respiratory treatments, and then he had OT. He tolerated tummy time a little better than he has in the past, which was excellent. After OT, he spent quite a bit of time in his tumbleform … Continue reading May 5, 2024
May 4, 2024
David got moved to a new room this evening. Since February 14th, he has called 3122 home, but as of tonight, he gets to call 3124 home. When he was first born, 3124 was his room, and he was on the fast path out of there. Perhaps, this change of scenery is what he needs … Continue reading May 4, 2024
May 3, 2024
Let’s start with the highlights of the day. First, David had the best wagon ever! He did 4 laps around the unit, and as we were finishing the fourth lap, Fern came trotting up. A sheet was found, and then Fern joined David in the wagon and we did a 5th lap with both of … Continue reading May 3, 2024
March 24, 2024
Happy snowy day! I don't have much to report since I spent most of the day at home - had I realized that the snow wouldn't start sticking to the roads until this evening, I would have stayed longer. I brought Eli and Anna to the hospital once everyone was awake and dressed this morning … Continue reading March 24, 2024
March 23, 2024
Today went really well for David. After 38 days, he was finally reunited with his best friend Bear. I wasn't sure if he would remember Bear or even want anything in his mouth at this point, but he immediately was happy to have Bear back. David was extubated this morning, and is currently on CPAP … Continue reading March 23, 2024
March 22, 2024
It was brought to my attention, that today is day 50 of our current hospital stay. In some ways it feels longer, and other ways it doesn't feel like that long at all. Well, today was a fantastic day for Mr. David. He exceeded expectations with his fluid goals and only took in 519 ml … Continue reading March 22, 2024