I am not sure how to start this or what all to say but I wanted to make sure we let everyone who has followed David's amazing life know everything. He had a CT yesterday which more or less confirmed what the neurologist thought. Large damage and the part of our brain that makes us … Continue reading June 18, 2024
Tag: Madi
June 3, 2024
Well, today the doctor decided to order the respiratory virus panel test. That was an intense few hours of our lives. As soon as they tested him, David had to be in isolation. This means our family is pretty much confined to his room - with the biggest issues being no End Zone and no … Continue reading June 3, 2024
May 6, 2024
David did not have many changes for today. Apparently his lipids were restarted last night since the order was never removed from his chart. So today, they were stopped once again, and David became free from all except his feeding pump again. David was also started back up on digoxin. He will need to be … Continue reading May 6, 2024
May 4, 2024
David got moved to a new room this evening. Since February 14th, he has called 3122 home, but as of tonight, he gets to call 3124 home. When he was first born, 3124 was his room, and he was on the fast path out of there. Perhaps, this change of scenery is what he needs … Continue reading May 4, 2024
April 10, 2024
They weaned David's ventilator setting today, and he was able to stay on the RAM cannula with it. He's still on BiPAP, there was some discussion as to whether he is ready for CPAP, but ultimately, David likes slow movements, so BiPAP it is. He'll go back onto SCUBA tonight at that lower setting as … Continue reading April 10, 2024
April 9, 2024
Not many changes from yesterday. David's goal is still to try to take off some of his fluids, but he's yet to be negative. They continued the pause of the autowean of his withdrawal meds. He's still agitated and going through withdrawal, so it's not time to wean them yet. His vent setting was reduced … Continue reading April 9, 2024
April 8, 2024
The analogy I will use to describe today is as follows: we were off on a hike down the trail, but we lost our way (or maybe we ended up on a deer trail). Although, we were heading in the approximate direction, we're going to take a few steps back to find the trail again … Continue reading April 8, 2024