One week. It's been one week since we said goodbye to David. I've wanted to post something for a while, but it is a struggle. If anyone is familiar with Randy Pausch's Last Lecture, at the end he said the whole lecture was a head fake. It was not a lecture for those in the … Continue reading June 27, 2024
Tag: Nadia
June 10, 2024
It is my turn to write a post. So there will probably be some mistakes, grammatical errors and things forgotten, but hopefully it will be ok 😀 . Overnight last night David slept ok except for a 2 hour stent between 12-2am where he woke up and did quite a bit of coughing and gaging … Continue reading June 10, 2024
June 5, 2024
There's really not much to report for today. Apparently David was quite fluid positive yesterday. So much that I almost suspect an error in the reporting. In any case, since his kidneys are still holding at a very good position, his diuretics were increased again. David's been receiving IV diuretics for a couple weeks now … Continue reading June 5, 2024
June 4, 2024
David had a fairly good day. When I arrived he was already awake and sitting in his high chair rocking out to Taylor Swift. In fact, he was greeting everyone who walked past his room. His provider thought he should still be sleeping. That's the thing about Davids - they take 2 morning naps and … Continue reading June 4, 2024
June 3, 2024
Well, today the doctor decided to order the respiratory virus panel test. That was an intense few hours of our lives. As soon as they tested him, David had to be in isolation. This means our family is pretty much confined to his room - with the biggest issues being no End Zone and no … Continue reading June 3, 2024
May 29, 2024
In some ways, being in the hospital is a time warp. Some days you wonder where the last 3 hours went, and other days you wonder if there is an end in sight. Other times, we are reminded that life continues on outside the hospital. We get so caught up with what's happening within our … Continue reading May 29, 2024
May 28, 2024
Today was a restful, but also quite a busy day for Mr. David. He was laughing up a storm this morning, but neither Adam or I can remember what was so funny, before he fell asleep again. After he woke up, his nurse was going to do all the things she had postponed while he … Continue reading May 28, 2024
May 22, 2024
Well, after several good days in a row, it was about time for David to have a less happy day. He had an exciting day with therapies though. He didn't have much change round-wise, but there were lots of discussions about his potential g-tube and what's the next step if his bleeding returns. It sounds … Continue reading May 22, 2024
May 21, 2024
Another good, stable day for David. It's funny, the folks who haven't seen David since last week keep wondering what changed because he's so happy now. The only thing that I can think that has changed was his valium dosage. Whatever it is, since Saturday, he's like a different baby - full of smiles, takes … Continue reading May 21, 2024
May 17, 2024
t's hard to say how David is doing - he still fusses quite a bit when he's not moving around in his wagon. However, it's hard to know if he's uncomfortable about something or just expressing his dislike for his helmet. He seemed to enjoy his mama roo this morning. After enjoying those swings for … Continue reading May 17, 2024