Today was a day of learning. We met with the transplant team, and they explained the process and everything that goes into being listed, finding a match, and what life looks like after a transplant. There's a lot of information for us to process, and we'll figure it all out in time. We have a … Continue reading May 15, 2024
Tag: Nadia
May 14, 2024
A busy, but less exciting day for David today (thank goodness)! It was actually a really good day for him. He had two field trips off the unit and when he was awake, he was happy and wiggly and just seemed like himself. David kept his nurse busy today, but it was a good busy. … Continue reading May 14, 2024
May 10, 2024
I know we initially planned on the cardiology team meeting today in conference to have an in-depth conversation about David's next steps, but it did not happen. It was the planned before he had his brain MRI and cardiac cath scheduled for Monday, both of which will contain valuable pieces of information that could help … Continue reading May 10, 2024
May 8, 2024
Another day of discomfort for David. At least the morning was. I was hoping that being NPO and then getting 2ml of straight milk with no fortification would help. However, this morning, he was just as uncomfortable as yesterday. I don't think even his ativan helped. However, I think it was because his potassium supplement … Continue reading May 8, 2024
May 7, 2024
Well, David overheard the plans yesterday, and like we thought, he has other plans. This afternoon while I was discussing with a provider and he was in his wagon, one of the nurses nearby said she saw him moving his head back and forth as we were talking, as if he was intently listening in. … Continue reading May 7, 2024
May 6, 2024
David did not have many changes for today. Apparently his lipids were restarted last night since the order was never removed from his chart. So today, they were stopped once again, and David became free from all except his feeding pump again. David was also started back up on digoxin. He will need to be … Continue reading May 6, 2024
April 28, 2024
It was another day of a step back, in the hopes that the coming days are steps forward - but you never know with Mr. David. It's definitely not a linear progression, maybe a sinusoidal wave added to a linear equation would be a good way to model his trajectory. Anyway, when I arrived, David was … Continue reading April 28, 2024
April 13, 2024
David had a really good day today. It started off a little rocky - he had trouble settling down for his nurse overnight. I forgot to mention they stopped his delirium med that he would get at bedtime last night since he had been on it for a month. His nurse ended up giving it … Continue reading April 13, 2024
April 8, 2024
The analogy I will use to describe today is as follows: we were off on a hike down the trail, but we lost our way (or maybe we ended up on a deer trail). Although, we were heading in the approximate direction, we're going to take a few steps back to find the trail again … Continue reading April 8, 2024