I posted when you entered the world and suprised us all David. Now I do again when you leave us to share your love and amazing joy with those in heaven waiting for you. Good bye David, we will never fully know how many lives you have touched for the better in these short seven … Continue reading June 20, 2024
Tag: Shah
May 13, 2024
Today was more of a difficult day - but David was a rockstar and handled everything thrown at him. He's the strongest person I know. We do not know God’s plan, but things fell into place in such a way that reminds us He’s been in charge of the timing all along. David was a … Continue reading May 13, 2024
May 1, 2024
Happy half-birthday David! There's just so much I want to say and so much emotion bottled up into today, but it’s also getting late. One year ago, we were likely thinking today would be his first day eating some purees, which would probably be sweet potatoes like his siblings. Six months ago we did not … Continue reading May 1, 2024
April 16, 2024
David's cardiologist came and spoke with us first thing this morning. She had spoken to his surgeon since we last spoke yesterday, and since David is progressing, albeit at a snail's pace (my words, not hers), he doesn't want to make any decisions about David's future at this time. He would like to see how … Continue reading April 16, 2024
April 15, 2024
Once again, just slow changes for David today. His x-ray looked great this morning, so they lowered the PEEP of his CPAP to 7. David has always seemed to prefer 8, but his lungs are in a really good spot at this moment. There was talk about weaning some of his treatments, but the last … Continue reading April 15, 2024