So, I'm sitting here at home and don't know what to do with myself. There is plenty of stuff to do here that has been neglected the last few months since it didn't seem as important as being with David, but my mind is still with David tonight. I was able to spend last night … Continue reading June 17, 2024
Tag: Taylor
June 4, 2024
David had a fairly good day. When I arrived he was already awake and sitting in his high chair rocking out to Taylor Swift. In fact, he was greeting everyone who walked past his room. His provider thought he should still be sleeping. That's the thing about Davids - they take 2 morning naps and … Continue reading June 4, 2024
May 23, 2024
David's day started off where yesterday left off, but by afternoon he was doing much better. He is super fluid overloaded after his blood yesterday, so today was mostly trying to get some of the fluid off of him. His kidneys are loving the fluid though (his lungs not so much). He was a little … Continue reading May 23, 2024
May 22, 2024
Well, after several good days in a row, it was about time for David to have a less happy day. He had an exciting day with therapies though. He didn't have much change round-wise, but there were lots of discussions about his potential g-tube and what's the next step if his bleeding returns. It sounds … Continue reading May 22, 2024
May 21, 2024
Another good, stable day for David. It's funny, the folks who haven't seen David since last week keep wondering what changed because he's so happy now. The only thing that I can think that has changed was his valium dosage. Whatever it is, since Saturday, he's like a different baby - full of smiles, takes … Continue reading May 21, 2024
May 9, 2024
David had a fairly good day. Not the best, but still better than some that he's had lately. I had one goal for David today - to make it to the Dog Pawty in the Endzone with the facility dogs Fern and Inka. However, as fate would have it, David was taking a good nap … Continue reading May 9, 2024
April 30, 2024
Today had a lot of happy moments, some sleepy moments, and a few grumpy moments for Mr. David. Somehow, he completely slept through his echo and later his EKG. I don't know how that happened. The last time he was calm for echo was when he screamed for the prior hour and a half getting … Continue reading April 30, 2024
April 26, 2024
Today was very similar to yesterday in terms of David’s demeanor. Once again his fussiness ruled the day. He seemed very uncomfortable. No one is quite sure as to what is causing the discomfort - is it heart failure, is it digestive, does he have fractures? From what I and others think, it seems to … Continue reading April 26, 2024
April 24, 2024
Today was a day of fun visitors and new adventures. When I arrived, the room was still dark since David was snoozing. I spoke to his nurse who was sitting right outside his room where he could watch both of his patients. He said David slept well through the night, which was excellent. Then I … Continue reading April 24, 2024
April 19, 2024
We're happy to report David's nurse who has taken care of him the most was back today. David needs to start giving her some smiles because she has been instrumental in getting him to his current state. He's come so far and everyone is amazed at how he's doing now. David was so excited when … Continue reading April 19, 2024