t's hard to say how David is doing - he still fusses quite a bit when he's not moving around in his wagon. However, it's hard to know if he's uncomfortable about something or just expressing his dislike for his helmet. He seemed to enjoy his mama roo this morning. After enjoying those swings for … Continue reading May 17, 2024
Tag: Wagon
May 15, 2024
Today was a day of learning. We met with the transplant team, and they explained the process and everything that goes into being listed, finding a match, and what life looks like after a transplant. There's a lot of information for us to process, and we'll figure it all out in time. We have a … Continue reading May 15, 2024
May 12, 2024
David would like to wish all the the motherly figures in his life a Happy Mother's Day! He had a fairly good day. Overnight, his Mama Roo arrived to his room, so we gave it a try this morning, and he loved it. He was full of smiles as he happily bounced away. The kids … Continue reading May 12, 2024
May 11, 2024
There are not many changes for David - the goal of the weekend is to minimize changes and just get him to Monday. David did end up back on high flow a couple of different times today. He was having a little work of breathing and dropping his oxygen saturations. He overcame that and was … Continue reading May 11, 2024
May 10, 2024
I know we initially planned on the cardiology team meeting today in conference to have an in-depth conversation about David's next steps, but it did not happen. It was the planned before he had his brain MRI and cardiac cath scheduled for Monday, both of which will contain valuable pieces of information that could help … Continue reading May 10, 2024
May 9, 2024
David had a fairly good day. Not the best, but still better than some that he's had lately. I had one goal for David today - to make it to the Dog Pawty in the Endzone with the facility dogs Fern and Inka. However, as fate would have it, David was taking a good nap … Continue reading May 9, 2024
May 7, 2024
Well, David overheard the plans yesterday, and like we thought, he has other plans. This afternoon while I was discussing with a provider and he was in his wagon, one of the nurses nearby said she saw him moving his head back and forth as we were talking, as if he was intently listening in. … Continue reading May 7, 2024
May 6, 2024
David did not have many changes for today. Apparently his lipids were restarted last night since the order was never removed from his chart. So today, they were stopped once again, and David became free from all except his feeding pump again. David was also started back up on digoxin. He will need to be … Continue reading May 6, 2024
May 4, 2024
David got moved to a new room this evening. Since February 14th, he has called 3122 home, but as of tonight, he gets to call 3124 home. When he was first born, 3124 was his room, and he was on the fast path out of there. Perhaps, this change of scenery is what he needs … Continue reading May 4, 2024
May 3, 2024
Let’s start with the highlights of the day. First, David had the best wagon ever! He did 4 laps around the unit, and as we were finishing the fourth lap, Fern came trotting up. A sheet was found, and then Fern joined David in the wagon and we did a 5th lap with both of … Continue reading May 3, 2024