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March 25, 2024
Busy day for our little guy. For the third day in a row, David needed his art line dressing changed. His stools are super liquidy, which is a sign of withdrawal, and they keep finding a way onto the dressing. He is off all his IV sedation drips now, and you can definitely tell he’s…
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March 24, 2024
Happy snowy day! I don’t have much to report since I spent most of the day at home – had I realized that the snow wouldn’t start sticking to the roads until this evening, I would have stayed longer. I brought Eli and Anna to the hospital once everyone was awake and dressed this morning…
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March 23, 2024
Today went really well for David. After 38 days, he was finally reunited with his best friend Bear. I wasn’t sure if he would remember Bear or even want anything in his mouth at this point, but he immediately was happy to have Bear back. David was extubated this morning, and is currently on CPAP…
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March 22, 2024
It was brought to my attention, that today is day 50 of our current hospital stay. In some ways it feels longer, and other ways it doesn’t feel like that long at all. Well, today was a fantastic day for Mr. David. He exceeded expectations with his fluid goals and only took in 519 ml…
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March 21, 2024
David had a great day! He tolerated a sedation wean over night, and then again this morning. He was doing so well, that they weaned him again this afternoon and may wean it again this evening. He’s mostly happy when he’s awake and falls asleep calmly. His pneumatosis seems stable. They switched him from 2-view…
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March 20, 2024
I would like to say that it was another fairly uneventful day today; however, David’s x-ray this morning was showing a bunch of gas in his intestines. The prevailing thought is that this is pneumatosis, so he is still NPO (no feeds), and was started on 3 different antibiotics. This was a fun exercise for…
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March 19, 2024
Not much to report for today – David did well and tolerated a slight weaning one of his sedation meds. He had another bloody stool last night and one this afternoon. X-rays still look fairly good, so they will continue to monitor it, and his feeds are still paused at the moment. He also had…
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March 18, 2024
Busy day for David. He started off with an ultrasound to check on veins and arteries in his legs to determine which are open and which are occluded. Afterwards, he had his wound vac change. It sounds like it looks good, but he’ll continue to have that changed for the next couple weeks as his…
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March 17, 2024
Happy St. Patrick’s Day! Not that we did much to celebrate – Eli wore his Christmas sweater. Anna wore her Thanksgiving shirt yesterday, so we’re on a roll with the times. David had a nice relaxing day. He seemed comfortable and just got a day of rest. He really needed it, as I think he…
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March 16, 2024
David lasted the night with his scuba mask! I arrived in the morning as they were rounding on David and said he was walking a fine line of needing to be reintubated, and they will continue to monitor him. It wasn’t so much his breathing, but his cardiac output – was this causing too much…