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March 15, 2024
Today took a twist that I did not see coming based on conversations yesterday. They switched up David’s diuretic but didn’t have much hope that it would help get fluid off him. Due to that, they are not sure if they can get David into a better spot than he currently is, so after much…
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March 14, 2024
Happy Superhero Day (FKA Pi Day)! We would like to introduce you to Captain Chameleon! His super power is hearing thoughts. We used to think he was just listening to the plans of the day and then telling everyone that was not actually the plan and reminding us that he’s in charge. However, we have…
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March 13, 2024
Well, I should probably recap last night before covering today, as the events of last night drove everything today. Adam was sending me updates as I was finishing up last night’s post, but there were too many unknowns at that time and things seemed to be changing by the minute. Anyway, David had a party…
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March 12, 2024
Apparently David knows quite a bit about superheroes because he won trivia today. All while being transported to IR and having a PICC line placed! Good thing his mom accompanied him on this trip, because she knows hardly anything about superheroes. David was brought down by someone from respiratory, his nurse, his NP and his…
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March 11, 2024
Well, David’s chest did not get closed up today. His surgeon did say it’s only open a tiny bit (1.5-2cm) and has a chance it could heal on its own. They will reassess it next Monday. In the meantime they replaced his wound vac, and removed his chest drains. Before the procedure, they were able…
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March 10, 2024
Slow and steady progress was the name of the game today. David had his eyes open a lot more than he has since the surgery. Not only were they open, but he was tolerating being awake. He seemed to be taking in his surroundings and putting faces to voices. His periods of being upset were…
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March 9, 2024
I feel as if David had a good day today. It was his first day on full feeds and he seems to be handling it well. Tomorrow they will start fortifying his feeds. With eating his food though, comes blow outs, and he had a massive one for his nurse last night. Also, he no…
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March 8, 2024
David had mostly good day. The nurse who has had the most time with him was back from her week off, and we were excited to see her again. There have been lots of changes since she last saw him, but it’s nice having some consistency and she seems to understand him really well too.…
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March 7, 2024
Not much of note for today. They are still weaning his ventilation support and have been mostly happy with his progress. They have been giving him some non-IV medications to help him wean off some of the IV sedation. However, David continues to get very upset whenever he starts to wake up. He holds his…
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March 6, 2024
We had another reality check today. David had a CT scan this morning, and we got the results. They were what we expected, but not what we wanted. He has new brain injuries that are consistent with what they would see with a stroke or strokes. He had a CT scan a couple days after…