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April 25, 2024
Fussy, fussy, David. No one knows why he was so irritable today. He wasn’t screaming upset, just fussy and didn’t want to sleep. I think most of the day was spent trying to comfort him and figure out the reason behind the cries. There was no clear cut reason for the fussiness – no drugs…
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April 24, 2024
Today was a day of fun visitors and new adventures. When I arrived, the room was still dark since David was snoozing. I spoke to his nurse who was sitting right outside his room where he could watch both of his patients. He said David slept well through the night, which was excellent. Then I…
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April 23, 2024
Well, it was kind of an interesting day today. David started off by being visited by his friends from vascular who placed a peripheral IV in his arm. This was because the folks from CT called and said that they would be ready for him at 8AM, but he needed an IV for the contrast.…
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April 22, 2024
Highlights of today include resuming feeds, Fern time, and tummy time “fun”. First off, David’s feeds. He still has small flecks of blood in his stool, and for now we’re just going to accept it and resume his feeds. After consulting the GI doctors, they do not think he has a dairy allergy. They said…
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April 21, 2024
Today it was decided to not wake David anymore overnight for his respiratory treatments, so they are now all squeezed into the wakeful hours. It was kind of funny – every time I got to hold David today, a short time later respiratory came in to get him his nebulizers. David does not like his…
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April 20, 2024
Well, today was a day of steps forward while simultaneously taking steps backward. So, maybe we didn’t end up anywhere – it’s hard to say. His respiratory support was weaned slightly – they moved his high flow from 6 liters to 4 liters. His nurse said that’s pretty much the last step to not having…
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April 19, 2024
We’re happy to report David’s nurse who has taken care of him the most was back today. David needs to start giving her some smiles because she has been instrumental in getting him to his current state. He’s come so far and everyone is amazed at how he’s doing now. David was so excited when…
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April 18, 2024
Very minimal changes for David today. He was on high-flow oxygen all day before being switched back to RAM CPAP tonight. He was on CPAP last night as well. He did really well on his high-flow today, with his only frustration being unable to dislodge the cannula. David’s chest/abdominal x-ray looked great today. His right…
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April 17, 2024
David got to go to the floor and pet Fern today! That was definitely the highlight of his day. Once he felt how soft she is, a smile came across his face and he started petting her – it was a sight to behold. If only the puppies waiting at home would be as calm…
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April 16, 2024
David’s cardiologist came and spoke with us first thing this morning. She had spoken to his surgeon since we last spoke yesterday, and since David is progressing, albeit at a snail’s pace (my words, not hers), he doesn’t want to make any decisions about David’s future at this time. He would like to see how…