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April 15, 2024
Once again, just slow changes for David today. His x-ray looked great this morning, so they lowered the PEEP of his CPAP to 7. David has always seemed to prefer 8, but his lungs are in a really good spot at this moment. There was talk about weaning some of his treatments, but the last…
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April 14, 2024
Today marks 2 months since David’s Norwood surgery. Two months in the CVICU. Two months with a nurse dedicated to only him all hours of the day (and some days two when he was helping train in some of the new/newer nurses to the unit). Last night David did not tolerate his SCUBA, so after…
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April 13, 2024
David had a really good day today. It started off a little rocky – he had trouble settling down for his nurse overnight. I forgot to mention they stopped his delirium med that he would get at bedtime last night since he had been on it for a month. His nurse ended up giving it…
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April 12, 2024
David’s big change is he was on CPAP all day and all last night! After seeing the ventilator today, I realized he still has a PEEP of 8, which he adores, and CPAP just doesn’t add any additional PEEP like BiPAP does. BiPAP has a pressure support that’s higher for inhaling and a different pressure…
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April 11, 2024
Small changes for David today. His feeds had increased fortification added to them – from 22 kcal to 24 kcal. He was on a weaned vent setting for SCUBA last night and did well (12/6) – reduced PEEP even. We know his lungs really appreciate a PEEP of 8 though, so he was on RAM…
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April 10, 2024
They weaned David’s ventilator setting today, and he was able to stay on the RAM cannula with it. He’s still on BiPAP, there was some discussion as to whether he is ready for CPAP, but ultimately, David likes slow movements, so BiPAP it is. He’ll go back onto SCUBA tonight at that lower setting as…
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April 9, 2024
Not many changes from yesterday. David’s goal is still to try to take off some of his fluids, but he’s yet to be negative. They continued the pause of the autowean of his withdrawal meds. He’s still agitated and going through withdrawal, so it’s not time to wean them yet. His vent setting was reduced…
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April 8, 2024
The analogy I will use to describe today is as follows: we were off on a hike down the trail, but we lost our way (or maybe we ended up on a deer trail). Although, we were heading in the approximate direction, we’re going to take a few steps back to find the trail again…
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April 7, 2024
It’s just another one of those days where not a lot of progress was made, and maybe a step back? There were not many changes today, except to wean his ventilator setting slightly. Well, this lasted all of 1.5-2 hours before David was having faster breathing so they decided to undo the change while he’s…
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April 6, 2024
No big changes for David today – in fact everything is the same as yesterday. His feeds are still increasing at 1 ml every 6 hours, and his medications that help with his withdrawal continue their auto-wean. Otherwise, he’s receiving the same respiratory support he received yesterday. Overall, David seemed happier today, but still slept…